night

  1. R

    Muscle Weakness, Spasms and Chronic Fasiculations

    I am new here and am FINALLY seeing a neurologist, but wanted to get a feel for the experience of others. After [failed] surgery to repair my left ankle joint, I knew they had damaged the nerves in my foot and ankle, so any problems in that leg was always seen as a result of the surgical...
  2. Kristina1

    involuntary stretching at night/early morning

    I am having a lot of my body involuntarily stretching (my legs and trunk mainly) in the middle of the night and early morning. I can't stop it from starting, but I can sometimes force it to end prematurely if that makes sense. The problem is, the stretch causes painful cramping and this thing...
  3. T

    Feet & Hands are numbed every night

    Hi, Recently I can't get a good sleep. I wake up 2 - 3 times each night because I am still trying to get used to with Trilogy machine and chin strip for dry mouth. Every time I wake up, my feet and hands are numbed. Any idea? Thanks
  4. S

    Gods plan is better than my own

    First of all I am 41 with 2 amazing kids and been married to the love of my life for almost 25 years! My life is wonderful even though the past year has been tough. My symptoms started with shortness of breath or at least that is what slowed me down to notice. I was hospitalized 2 times for...
  5. Nuts

    Venting tomorrow---which will surely cause more venting

    I think I'm officially graduating from "we're making the most of it while we can" to "Yep, this really, really sucks". It's been a tough few months, with five ER visits and two hospital stays, three cases of pneumonia and one of the flue. No Matt, when you stop choking on every bite or sip it...
  6. A

    new bipap issue at night

    I use a AVAP machine at night and during naps. It works extremely wellwell and is quite comfortable. But lately I have been waking up at night and it feels like suddenly my lungs can't handle the volume of air. This is quite uncomfortable and results in the extra air forcing my mouth open to...
  7. J

    Possible AlS/MND?

    I have read stickies and discussions above. I should start with I’m 24 year old male who has health anxiety. A couple months ago I had pins and needles sensation throughout my entire body. From then I would have days of all limbs feeling fatigued and tired. After that I had a near syncope...
  8. I

    1 year of bodywide twitching and new symptoms

    Hello everyone, I'm experiencing bodywide fasciculations for a year now and I've been told on the BFS Facebook group that my symptoms no longer quiet sound like BFS. I was almost kicked out of the group because I was causing anxiety, What caused that type of reaction? I'll try to explain it...
  9. A

    Muscle wasting both hands

    Hi :smile: I want to send my best regards to all participants of this forum, I respect all people affected by this desease and wish them to stay strong. I sympathise with people who lost loved ones to ALS. I hope you can help me to get an idea of what might be happening to me. 3 months ago I...
  10. J

    Just looking for advice

    Hello. I posted a few times last year regarding my symptoms and the results of my medical exams and doctor appointments. Whole body weakness, especially in my arms, and legs, twitching, excruciating back pain, heavy legs, and recently issues with my hands. Went to a neurologist in august at...
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