pbp

  1. Z

    tonuge atrophy

    well i clearly have it i can see it and so can everybody that looks dent in side of tonuge and thining tonuge around the front on the right side,guess my question is as it has developed so quickly and rapidly can it be caused by something other than pbp are als cant find much info on the net...
  2. M

    Breathless episodes in PBP?

    My Dad has PBP and he occasionally has these breathless episodes, sometimes it happens after he gets stuck talking to someone on the phone, he feels like he is running out of air, like he cant get air in. It seems to happen mostly when he is under pressure. He runs outside and does some...
  3. S

    Advice needed

    Hi, my name is Sherry and I was diagnosed March 6, 2007. My symptoms started 1 1/2 yrs. earlier. From what I have read so far this was not as long as some of you. I am from Alabama, so you can imagine my southern drawl and PBP. I need some advice about the quality and ability of life on the...
  4. C

    Anyone been to UCLA Med Center/Michael C. Graves?

    Hi All, My husband got a referral from our insurance to see neurologist named Michael C. Graves at UCLA to get another opinion on his diagnosed of PBP. Anybody out there have any experience with UCLA neurology dept. or Dr. Graves in particular? What did you think? What "bedside manner" can we...
  5. N

    Mom "diagnosed" today

    Hello. Well, my mom had her EMG today and the neuro said he could not conclude that she has ALS because most of her EMG was normal, except for some noted issues in her lower legs, but he didn't seem to think it was extremely abnormal. He essentially said that either its Bulbar onset ALS which...
    • nsmith555
    • Thread
    • advice als bulbar bulbar onset choking diagnosed eating emg feeding feeding tube life onset pbp
    • Replies: 5
    • Forum: Progressive bulbar palsy
  6. H

    A first hello and a question

    My mother (not I, as it says in my profile), who is almost 75, has recently been diagnosed with PBP. We first noticed that her speech was changing last summer. Here's my question: My mother has macular degeneration as well as PBP. This means that she can't see people's faces. She also...
  7. C

    Best Neurology Center in the US?

    Per Al's suggestion (Thanks Al :) ), I'm posting this to the General forum to see if there is input from anyone there. Hi All, Looking for someplace to get a 3rd objective opinion for my husband who has been diagnosed with PBP/possible ALS. In you opinion, where is the "best" neurology...
  8. Z

    how fast does pbp set in

    with pbp does it come on in a couple of months are does it take years to show signs and can it start with just the diffucult swallowing?
  9. C

    Best Neurology Center in the US?

    Hi All, Looking for someplace to get a 3rd objective opinion for my husband who has been diagnosed with PBP. In you opinion, where is the "best" neurology center in the US? My definition of "best": -Thorough, comprehensive testing (does not rely on results or opinions from other...
  10. L

    hostile father

    Hi. I don't know if anyone can help me with this, but it's very upsetting, and I just really need a place to air this. My mother has PBP. She's had it for 8 years now, and she still can eat soft foods and swallow okay. Her main problems are speaking (non-existent now) and chewing...
    • Lynn555
    • Thread
    • als anger angry back balance confused denial falling father health heart ice pbp problems risk support swallow walker wanted weakness
    • Replies: 10
    • Forum: Progressive bulbar palsy
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