pbp

  1. A

    Is it PBP-strange symptoms.

    Hi, since one week I have strange sympoms, which I think are pbp symptoms.First suddenly one small part on my right side of my tongue feel dead.It happend suddenly.Then 5 days later i felt this on the next small part of tongue on that same side .2 days ago tha same thing happen on the rigt...
  2. J

    Hot tips anyone

    Has anyone have any handy tips on helping my mother. She has pbp and is coping well however she has problems with excessive phlegm build up. Last time she stayed with me she stopped breathing because of the phlegm and I called the ambulance. At hospital the doctors perscribed tablets to help...
  3. S

    Does PBP always show up on tests?

    Hi. I'm new to the group. Nice to have a place to go. Three years ago my sister, now age 60, suffered what seemed to have been a stroke that resulted in slurred speech. The MRI reflected a cluster of irregular blood vessels, thus the stroke diagnosis. It was blamed on diabetes. She lost...
    • Slipper
    • Thread
    • ability age arm baclofen brain diabetes diagnosed diagnosis dying fear food ice info life lump meds movement mri neurologist onset pbp pneumonia reading saliva slurred speech spasms speech stiffness stroke support swallowing symptoms tests therapy tremor weakness wrong
    • Replies: 2
    • Forum: Progressive bulbar palsy
  4. R

    Worried any advice.

    Hi, I am very new to this site so please excuse me if I do not come across clearly. I have had difficulty swallowing for about 6 months now. It is the usual chewing of food for long periods of time only to then sometimes wash down the food with a drink. I have no problem with fluids, only with...
    • RAidanM
    • Thread
    • advice als als? anxiety bulbar bulbar onset choking food onset pbp pressure problem robert sleep sporadic swallowing symptoms tongue worried
    • Replies: 5
    • Forum: General discussion about ALS/MND
  5. L

    seeking info on PBP

    My husband just got diagnosed with PBP and we are trying to find out as much info as possible. Its very hard to understand how this came about and what caused it. He started slurring his words about 1yr ago but was under a lot of stress taking care of his dying mother. After she passed, we...
    • lauretta
    • Thread
    • clinics diagnosed dying ice info pbp problems questions saliva speech stress swallowing
    • Replies: 10
    • Forum: Progressive bulbar palsy
  6. S

    ALS/PBP and Communication

    Hi all! I am a Speech-Language Pathologist working with two patient's that have ALS (both Bulbar onset/PBP). I need your thoughts on a statement that a hospice employee said to me. Any comments welcome! :) She said "Most patient's don't want to live past the point where they are no longer...
  7. C

    Caregiver Costs & Qualifications

    Hi All, My husband (diagnosed of PBP and slowly progressing) is full-time stay home Dad & our family lives off my income. I'm trying to plan ahead to when full-time care may be required, but have some questions. 1. What are the range of costs for caregivers? (Not including medical equipment...
    • COlisa
    • Thread
    • caregiver caregivers dad disability equipment family helpful home care medical medical equipment night nurses pbp questions sleep work
    • Replies: 9
    • Forum: Current caregivers
  8. C

    When to stop looking for another diagnosed?

    OK, my hubby has heard from 2 neuros that he has MND (PBP to be specific). The first neuro is the local guy who diagnoses 8 or 9 cases of ALS a year. The 2nd was the head of neurology at ALS clinic at the University of Colorado. We are thinking about going to Mayo Clinic to ask for a 3rd...
  9. C

    Anybody out there with slowly progressing PBP?

    Hello, My husband (age 43) has been diagnosed with PBP by 2 neurologists now. He first noticed symptoms almost a year ago. His speech is very slurred, but understandable. He only coughs once in a while when eating or drinking liquids. He also has hyperreflexia in one leg and almost no reflexes...
    • COlisa
    • Thread
    • age bulbar diagnosed diagnosis eating emg hyperreflexia pbp progression speech symptoms weakness
    • Replies: 28
    • Forum: Progressive bulbar palsy
  10. C

    PBP after dental visit?

    My 89 year old mother, who was in great health, went to the dentist and had a novocaine injection where the jaws meet. She noticed her speech slowing immediately afterward and In 7 months, she has progressed to writing notes and needing a PEG. I found two other women on a PBP forum who...
    • Carol
    • Thread
    • afterward atrophy book bulbar dentist diagnosis emg feeding feeding tube health immediately mri myasthenia gravis neurologist pbp peg research speech swallow test tests women
    • Replies: 8
    • Forum: General discussion about ALS/MND
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