peg

  1. texastracy

    Clinic Visit

    Went to clinic Friday, 3/20. It was packed with newly diagnosed patients. Good news and bad news. - I haven't lost any weight since the last visit and getting my PEG tube, in fact gained 2 pounds! I'm blending foods not on formula.my digestive system can't handle the formula. - haven't had...
  2. R

    Natural Formulas

    Has anyone had any luck getting Medicare to pay for a natural or organic formulary for the Peg tube. Has anyone ever used one? Ensure seems to be all chemicals and SUGAR! How can that be good for you?
  3. J

    Decline Question

    Hi My Mother was diagnosed with bulbar onset ALS summer 2012. She is currently almost completely paralyzed (some hand and arm movement), on bipap 24/7, has peg tube, in bed at all times due to sitting up it hurts to breath (with bipap), on Hospice. She is on anxiety medications and some pain...
    • jab1222
    • Thread
    • advice age als anxiety arm bed bipap bipap 24/7 bulbar bulbar onset decline diagnosed hospice medicine morphine movement onset pain paralyzed peg
    • Replies: 12
    • Forum: Current caregivers
  4. G

    Ftd/als expertise, please!

    This post is for those who have experienced (or are currently experiencing) caring for someone with FTD/ALS. I am hoping to maybe gain some insight and direction from those of you who have been down this road before. I'll give you a quick rundown of our situation: After exhibiting...
    • goldie_12
    • Thread
    • advice age als ball children clinic dementia diagnosed documents feeding food frustrated ftd life love peg please help please help me questions respiratory swallowing worry young
    • Replies: 10
    • Forum: ALS and frontotemporal dementia
  5. texastracy

    Peg tube update

    I love the peg tube. Easy to use. Forget it's there most of the time. Healed great and easy to keep clean. Only problem was theformula. Made me have explosive movements. Hubby read the ingrdient list on the can and said no more of this. So now we blend. I eat healthier than I ever did...
  6. D

    how do I know how much time I have with my dad

    My dad was diagnosed by a local doctor in january of 2014 and we wanted a second opinion so we waited to go to an ALS specialty hospital in Houston and they confirmed ALS. Since then my dad has lost his speech completely and has had to have a peg tube put in. His legs seems to be getying weaker...
  7. Bad Balance

    Peg?

    The fellow at my last clinic visit suggested that I consider a peg to bypass the coughing and choking when I eat What thinks. You?
  8. T

    My Mom is finally at peace

    My mom passed away on December 21st. She was going on day 13 of no tube feedings. I haven't been able to come back to the forum for a while, and I apologize for that. I guess I've been trying to make sense of the last 4 difficult months of her life, and I'm still as confused as ever. She...
    • TGB1
    • Thread
    • back breathing breathing problems bulbar confused diagnosed early fell hip immediately life nursing home onset peg problems sad walker
    • Replies: 13
    • Forum: In memory of
  9. P

    New peg tube

    I am being scheduled to have a new peg tube put in. It's called a mick-ey has anyone any experience with this type of tube. Patrick
  10. jillinak

    Gallbladder issues/Removal?

    A few years back I had a gall bladder attack. I haven't had any since until 1 month ago. I was in the ER because the pain was so bad. An ultrasound showed that I had an inflamed gallbladder and gallstones. It was recommended I have the gallbladder removed in the morning. I have a DPS and Peg...
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