peg

  1. I

    Question about when to get Tracheotomy

    My husband was diagnosed with bulbar ALS 2 years ago. He has a PEG tube and has lost ability to walk in his own, use his hands and arms and speak clearly. Breathing has been ok. He uses his non invasive ventilator at night. The past week he has been complaining about the settings I. His vent. He...
    • Isaiah535
    • Thread
    • ability als breathing bulbar bulbar als coughing diagnosed helpful information night peg saliva sleep swallow tracheotomy ventilator
    • Replies: 19
    • Forum: General discussion about ALS/MND
  2. smoochiegal

    New to the forums

    Hi all, I have been on this site for about 2 weeks but this is my first post. I have laughed and cried with many of the posts I have read. I have felt connections with so many of you on here as I suddenly feel like I am not alone with this crazy disease. I could have written some of the posts I...
    • smoochiegal
    • Thread
    • arm diagnosed diagnosis fundraiser mobility muscles peg support tongue work
    • Replies: 14
    • Forum: Current caregivers
  3. M

    Help my mother

    Hi everyone, Not sure where to start but I wish I can find some kind of help... Mom was diagnosed a bit more than 2 y ago with bulbar onset. It has progressed enormously in the past months to the point where she does not talk, eat and move anymore; just slightly her head and one of her hands...
    • Momhasit
    • Thread
    • back bipap bipap 24/7 bulbar bulbar onset diagnosed driving food heart mad meds mucus onset peg reading saliva sleep suction work
    • Replies: 7
    • Forum: Current caregivers
  4. swalker

    Question about When to get PEG?

    I am new to the forums (see https://www.alsforums.com/forum/newly-diagnosed/27588-steve-s-introduction.html for a bit of an introduction). The doctors want me to start seriously considering a PEG. I have read many threads on this topic, but still have questions about how soon I should take the...
    • swalker
    • Thread
    • breathing diagnosed early food introduction medical neurologist peg problems questions respiratory swallowing tests trouble swallowing
    • Replies: 15
    • Forum: PEG feeding tube help
  5. twitchykitty

    Has anyone decided to not have a peg?

    Very recently My lung function Dropped from 75 to 45 over three months , I had Another test 4 weeks later and is still around 45. So the doctors asked me whether I want a peg or niv. To be honest I really do not want a peg. My reasons are I suffer from anxiety and got panicked having a alarm On...
  6. A

    Excessive Burping

    Anyone else experiencing lots of burping? I'm on a PEG tube and mostly don't have a problem but occasionally, I could have an entire day where I'm burping continuously and it's irritating! I don't know why this happens or if there's a way to stop it.
Back
Top