peg

  1. R

    Peg tube installed Friday... now what?

    Peg tube installed Friday... now what? I don't need yet, but had it installed while still ok. Have not removed bandage yet... What care do I need to do if I don't use for a year? (or more (I hope)
  2. A

    Time to say Hello

    Long time lurker and figured it was time to actually become more active with this great community and say thanks for all the amazing tips, advice, and information everyone shares here. My partner and PALS has what seems to be a quick progression. Bulbar onset, DX Jan '17. PEG and SPCath by end...
    • asmith3079
    • Thread
    • advice bulbar bulbar onset information onset peg progression technology
    • Replies: 12
    • Forum: New members
  3. N

    I read a lot about trach, but still have questions if you could help...

    First, I know I started several separate threads, and I wonder if that's okay. Or should I just start one and stick to it? I start a new thread with each new question, and I'm afraid I may have more questions, and more each day... My dad's doctor recommends that he gets a trach together with...
    • NotMyDad
    • Thread
    • breathing bulbar bulbar onset cough assist dad diagnosed health hours life mucus onset peg problems progression questions saliva scared suction trach vent
    • Replies: 22
    • Forum: General discussion about ALS/MND
  4. B

    rib/side pain

    hi all got the peg placed about a week ago and am wondering if any of you experienced pain in the left ribs or side of the body ? any ideas why or when it will stop ? thanks all
  5. G

    diagnosed - atypical onset

    So wasn't sure wether to post back here on this forum but decided I would in the end. I was diagnosed with ALS about 2 months ago after two years of hell battling doctors, being sent through psychiatric system, multiple EMGs etc. I have pretty much known for the last 16 months that I had ALS...
    • Grieg
    • Thread
    • abdominal als atrophy back breathing breathing problems diagnosed fatigue fingers onset peg problems questions support swallowing twitching weakness
    • Replies: 7
    • Forum: Newly diagnosed
  6. I

    Interventional radiology vs surgery for PEG

    It is becoming apparent that it won’t be long before I will need a feeding tube. I find the physical aspects of how they insert it, but nothing from those PALS who have actually had it done. It sounds very uncomfortable to say the least. Am I just getting squeamish over this? I have no...
  7. chally

    New peg replacement

    Going into VA hosp on wed 28 to have peg replaced. Got infection at site hole and dr said time to replace that the button inside holding tube in place is probably breaking down as its been a year. Gonna get same kind but wondered about the outside button. It never stops being fun this BS...
  8. pdcraig

    Need some advice and a bit of a ramble

    It's been a long time since I last posted. My PALS is still hanging in, defying all predictions. It's sometimes hard to believe it's been over 5 years. He's reached the point where swallowing is a real issue. No PEG, he won't consent. He's saying he is choking on his saliva all the time. When I...
    • pdcraig
    • Thread
    • advice back choking conversation dying free frustrated goodbye muscle weakness muscles peg sad saliva scared sleep suction swallowing tongue weakness
    • Replies: 72
    • Forum: Current caregivers
  9. L

    Have I done all I can??

    Hello everyone. This is all very new to me even though I feel as though I am getting a crash course in ALS care. My beautiful mother was diagnosed with ALS in October. She is 77 and lives with me. Her progression has been so fast I am having a hard time keeping up with all she needs. I have...
    • LeelaaB
    • Thread
    • als bed clinic confused diagnosed finger hours peg progression respiratory respiratory failure trilogy vent wheelchair
    • Replies: 13
    • Forum: Current caregivers
  10. L

    Feeding tube

    Hi again , my husband Jim has a feeding peg , he is considering a Mickey . Is it a big deal to change them out.? The tape for the dangler is irritating his skin .We have changed tape brands , nothing has helped his skin.He had the tube put in about 3 months ago.Thank you , Dee
Back
Top