Hi everyone, My mother has been diagnosed with ALS 2 weeks ago. she is having a bulbar onset right now having a hard time swallowing, talking and eating. Her Neurologist told me her breathing is good and has a relatively slow progression. She is on Riluzole right now, seems like the progression...
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I know what you’re thinking. But these symptoms are very real. . I am so sorry to bother all of you becasue I know you get these messages a lot. but please hear me out here
I am 20. About 3 years ago, when I was 17, I felt my first symptoms.I vaguely remember feeling somewhat heavy or...
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I have been waiting for our official diagnosis from and ALS specialist/neurologist to post and we got it last Thursday so here I am.
My mom was her normal awesome self in April this year. In May we noticed she was slurring her words and she had a couple of falls while cleaning the house.
In...
I’ve had body wide twitching for 6 months. Went to neurologist after three months and got a clean EMG on right arm and leg. Have been in a total of five times for clinical exams (due to my anxiety of ALS - requested appointments with him) - all of which have come back non remarkable. He told me...
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First of all I would like to thank anyone who will take their time to read my post and maybe provide some information about my symptoms. I have read the sticky post "read before posting" but I still had to post. I know it's long - I just realized it now that I posted a preview. I also hope I...
Hi everyone I have been reading this forum for a month and I have a question regarding muscle weakness. If ALS is a disease of progressive muscle weakness, why does it happen without notice or feeling prior to total loss of function. Everyone says it is about failing not feeling but can't u...
Hello, I am posting on behalf of my Dad. He was diagnosed in June, rapid progression, and he is already in a nursing home living out his last days.
As his muscles have weakened, he is unable to move his neck. Because of that, his head falls down and to the side (the side of his ventilator...
My father has been suffering from upper motor neuron signs over the past three years, with no apparent lower involvement (clean EMG and still no fasciculations), which led doctors to think of PLS. In a second EMG, the results are indicative of "mononeuritis multiplex or motor radiculopathy", but...
In February I noticed my right knee started to hurt after exercising in pool. Just sitting on a noodle and peddling it like a bicycle (same as I had been doing for last year). I also continued walking on a treadmill for 10 minutes (1/2 mile) each morning, sometimes on a slight incline to get...
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as we know, it is 2:100 000.
iran has 0,7:100 000
iceland 0:340 000
there are some people that dont know they have als etcetc.
let there will be 4:100 000, that means 300 000 pals in a world.
did anybody try to put number of reversals, plateau etc in that (let's say) constant number?
ted harada...