progression

  1. B

    New PEG

    Last Thursday I had a PEG or G-tube inserted. Procedure went well and it looks okay but very painful, especially when I move in certain ways. It was inserted because my breathing has become so compromised; therefore it will be dormant until needed. I underwent a "twilight" anesthesia but I...
  2. jethro

    Jaw clicking, overweight, fasciculations and advise

    app. month ago or so my (right side) jaw started clicking when i open my mouth widely, but not when i chew. i have no problems with chewing or swalowing and i have powerfull bite. just like kind of joint appeadred suddenly. is it als connected, or...? this has been discussed many times, i...
  3. KarenNWendyn

    Rate of disease progression

    I’ve read people on this forum saying “progression is slow until it’s not”. I’ve also heard stories about people diagnosed with ALS/ MND who look back and realize they had inklings of their disease years before diagnosis. My own experience is that I may have had some signs of ALS a few years...
  4. T

    New Trial IPL344 Israel ( anti Inflammatory ? )

    A new trial Phase 1/2a, open - Label, Dose escalating study. Based on anti Inflammation, with Intravenous administration of IPL 344 ? Apparently used by one compassionate use patient and showed to halt progression for two years ?
  5. T

    Seeking Advice From PALS and/or Recently Diagnosed

    Hello - I have been experiencing neurological symptoms since around January. It started out very sensory in nature but over time, there have been some issues with my left hand/arm that have created some other concerns. Let me state the following because I am looking for insight as to what my...
    • Tarheel2005
    • Thread
    • als arm autoimmune clinical confused diagnose diagnosis emg eye hope idiot lift media muscle pain pals problem progression shoulder support symptoms test tests twitching wanted weakness
    • Replies: 5
    • Forum: Could this be ALS?
  6. M

    Questioning Symptoms

    Hello all, First I want to thank you for the plethora of information I found in the *Please Read* posts. It answered many of my questions. I also found some helpful info reading other posts. I am a rationale 47 year old Registered Nurse and am working on my PhD in nursing so I don't want to...
    • MikeTpa
    • Thread
    • age ankle arm back diagnosis family fell foot foot drop helpful hip information lift medical muscle progression questions reading scared shoulder surgery symptom symptoms worry
    • Replies: 5
    • Forum: Could this be ALS?
  7. A

    High Anti-GAD numbers in ALS?

    Hello, I am writing on behalf of a friend of mine who was diagnosed first with Stiff Person Symdrome (1/2018) and now this week has been given a new diagnosis of ALS. Symptoms began in August of 2017 and have been swift in progression. Frequent falls, cramps at night (or sensation of needing to...
    • Annaeliza
    • Thread
    • als als? autoimmune cramps diagnosed diagnosis friend new diagnosis night progression symptoms test twitching walker wheelchair
    • Replies: 15
    • Forum: Could this be ALS?
  8. C

    Please share your experience at ALS clinic - very frustrated!

    Hi all! We’ve only been to our ALS clinic once to meet neurologist and clinic nurse which was two weeks ago. During the visit we inquired about a couple trials my Dad may be interested in as well as treatments Riluzole and Edaravone. The Neurologist and Nurse said they could give us no advise...
    • Cherise77
    • Thread
    • advice als als clinic clinic confused crying cure dad eating edaravone frustrated hope neurologist problem progression questions riluzole supplements symptoms treatments vent vitamins
    • Replies: 13
    • Forum: Newly diagnosed
  9. MarieLaure

    The bar tender downstairs

    Going through hard period with my father’s progression speeding up. I arrive at his place late at night loaded with bags for a stay with him. Jeff, the bar tender stops me and says “ I don’t know you but I see you. How are you ?*» I say he is so so. He insists «* how are YOU*» Then he says if...
  10. P

    Radicava results

    This new thread's purpose is to document results after taking Radicava.
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