quality of life

  1. N

    Thank You - and musings on ALS Phobia, from an MD

    I've been reading the forums, specifically the DIHALS threads, for 15 months now. My ALS scare lasted 9 months and nearly shut my life down completely - but I've rarely ever thought about developing ALS myself over the past 6 months. I am an actively practicing Internal Medicine MD. I made a...
    • NeoMD
    • Thread
    • als als? bulbar bulbar onset cure depression diagnosis dihals early emg exercise exhaustion fasciculations finger friend medical medicine muscle neurologist onset pain quality of life reading research support symptoms testing tests tongue weakness
    • Replies: 11
    • Forum: Could this be ALS?
  2. J

    God was this right choice?

    Hello I am just hoping to find some peace in the decision we made My wife had a tracheotomy done two years ago and a feeding tube, She did not want these machines two years ago but I insisted on put that to her. We removed that last week after a conversation I just brought. Now I have a guilty...
    • josegresequera
    • Thread
    • conversation feeding feeding tube life please help please help me quality of life tracheotomy
    • Replies: 6
    • Forum: Religion
  3. J

    Disconnect Vent support and track

    Hello I am just hoping to find some peace in the decision we made My wife had a tracheotomy done two years ago and a feeding tube, She did not want these machines two years ago but I insisted on put that to her. We removed that last week after a conversation I just brought. Now I have a guilty...
  4. chally

    lost a friend

    sad day today as my wife and i had to have our beloved black lad "Riley" put down as he was in bad shape and his quality of life was not good. he was 15yrs old and a great protector on the farm. we had many good times with him and now he has shown me the way as he rest up on the hill. saddly chally
  5. C

    Help! Any advice of my ALS mom

    Hello! My name is Sira from Thailand. My mother is a 52 year-old woman. She was diagnosed ALS for 4 years. Her status now is mostly dependent due to her weakness. She can walk slowly with my help. She has a little bit problems with swallowing soft diet but she can’t eat by herself. She has...
    • cmd2do
    • Thread
    • advice als breathing diagnosed diet financial help! life medicine problems quality of life swallowing symptoms symptoms? weakness
    • Replies: 2
    • Forum: General discussion about ALS/MND
  6. swalker

    My breathing still sucks

    I saw the pulmonologist this week. They did an arterial blood gas and spirometry. They have stopped doing the full up Pulmonary Function Test because it just wears me out too much and does not provide meaningful information. The good news is that my arterial blood gas numbers are ok. In...
    • swalker
    • Thread
    • age bipap breathing denial diagnosis for sale grace information life love oxygen pulmonary function test quality of life respiratory sale test work
    • Replies: 30
    • Forum: General discussion about ALS/MND
  7. B

    Laying in wait

    I've read many posts of PALS looking back after their diagnosis and realizing there were subtle changes to their bodies months if not years before they were given the diagnosis of ALS. I'm no exception. I noticed as far back as 2006 something was going on. I was a golfer and I noticed when...
    • BlueandGold
    • Thread
    • back diagnosis early frustrated life muscles quality of life spasms stages thumb treatments tremor
    • Replies: 22
    • Forum: Rants and raves
  8. C

    Patti is dead

    Hi, all, Patti died last night from respiratory arrest. She had a good quality of life until her sudden and too-soon departure. I was just barely getting to know you all. Best of luck on your journeys. Calvin
  9. M

    Worried due to parathesia

    Firstly, thank you all so much in advance. I have read the guide to newbies and promise to leave you all in peace following your opinions/advice re: symptoms. You are all amazing - again, thank you in advance. Are these symptoms ALS? I have suffered with RLS since childhood and PLMD (both...
    • meherehi
    • Thread
    • advice als als? anxiety arm christmas clinical diabetes diagnosed diagnosis emg go away life muscle muscle weakness night onset pain quality of life sleep symptoms tests vitamin d weakness worried
    • Replies: 2
    • Forum: Could this be ALS?
  10. N

    Caregiver checking in

    I posted a long time ago about my dad. He does not have MND, they still think he has CIDP (although an outlier variant of it). There are some differences in his disease and ALS, but ultimately they look very similar. He is unable to move any part of his body, he is on a trilogy home vent 24/7...
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