quality of life
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Does this make sense?
My father saw a pulmonologist today who told him there are two types of ALS and he has the 'better' one that is only affecting his breathing and no other muscles. I know there are two different onsets and he has bulbar but that would seem to be the worse of the two. He was given hope that he...- starente15
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- als breathing father hope life muscles quality of life
- Replies: 5
- Forum: General discussion about ALS/MND
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Prognosis: One Year
Hello to all who happen to read this. We went to our second ALS Clinic in Pittsburgh PA today. Once again there was no respiratory therapist present. argh. I had called several times to ensure that one would be present to check T's breathing levels since we are going to Cleveland a week from...- NeedCourage
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- ability als breathing clinic denial diagnosed diaphragm dps eating heart hospice life muscles neurologist pacer paralysis problems quality of life respiratory swallowing
- Replies: 36
- Forum: General discussion about ALS/MND
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Need some advice regarding Symtoms
Dear All, Im glad i found this forum since it helps so many people like myself address questions regarding our symptoms, thanks to all you wonderful people. I really need your advice regarding some issues i have been facing for the past several months, in the summer i started to experience...- James1980
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- advice als ms bfs back bfs emg fingers foot go away heaviness life magnesium mri pain quality of life questions shoulder stiffness swallow symptoms test tongue twitching vitamin d vitamins weakness work
- Replies: 9
- Forum: Could this be ALS?
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Initial Commitment of $21.7 Million from Ice Bucket Challenge
The ALS Association Announces Initial Commitment of $21.7 Million from Ice Bucket Challenge Donations to Expedite Search for Treatments and a Cure for ALS Additional $12.5 Million in Matching Gifts Secured Bring Total Commitment to $34.2 million Washington, D.C. (October 2, 2014)—After the...- FrenchFries
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- age als als research alsa chair challeng clinical cost cure data diagnosis donations early genetic gifts hope ideas increase information medical neurology ohio progression quality of life research risk robert stem cell support therapy website wes work
- Replies: 0
- Forum: Research and trials
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Left arm weakness and elbow twitching
Hello. I will start this off by saying I admire all of you who have been diagnosed and continue to live life to the fullest. It's amazing what the attitude can do to people to make quality of life better. Anyways, I am a 27 year old male and I have a fairly active job in the summer then it...- scorpian223
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- anxiety arm arm weakness atrophy back burning clinical confusing diagnosed diagnosis dry mouth early emg fingers hours ice insurance life lift mistake muscle muscles night quality of life shoulder switches symptoms test twitches twitching wanted weakness work wrist
- Replies: 27
- Forum: Could this be ALS?
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New member
Hey everybody! I was recently diagnosed with PLS--after being wrongfully diagnosed almost 2 years ago with ALS. I'm still working(I'm a teacher) and hopefully can last another six years so I can retire with a full pension. I am 48 yrs old, and I have had these symptoms for about ten solid years...- Cammarak
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- age als decline diagnosed increase kids life new member night pls quality of life stiffness symptoms
- Replies: 22
- Forum: Primary lateral sclerosis
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Resource Anticipatory planning - trying to stay a step ahead
ALS generally has 3 main ‘starting’ points in the body, so some of the anticipatory planning will revolve around what parts of the body are most likely, or obviously failing first. These are – bulbar onset that starts with speech and swallowing, arm and leg onset. One of the biggest issues we... -
7/29/14 ~ Life Altering Day
That was the day my world was rocked by news that husband had ALS. Ours is a complicated story so I will try to make it short. For the last 4 years we have traveled the country for our job, working together, playing tourist on the weekend and coming home 10 days at Christmas and if we happened...- Grumpy'sWife
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- als angry arm arm weakness christmas diagnosis emg fell foot friend health hearing info insurance neurologist nose ohio pain pressure problem quality of life sad shoulder story test tests weakness wheelchair worry
- Replies: 31
- Forum: Newly diagnosed
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Feeding Tube and Vent...
I'm now at the point of needing to gain a better understanding of the Pros/Cons of the feeding tube and vent. My wife's current disposition, is to not do either of them. She is quite open to some type of cough assistance. At this point in her progression, she's able to eat (at least to chew...- JimInVA
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- ability back bipap breathing feeding feeding tube hearing ice information life night progression quality of life support swallow test vent voice
- Replies: 77
- Forum: Current caregivers
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Planning for the future
With the new Medicare rules it seems as if Medicare will be almost worthless when it comes to extending any quality of life for ALS patients. Do I understand correctly that we will no longer be able to get any help with devices that give us some freedom like power wheelchairs or assistive...- nebrhahe53
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- als assistive devices cost equipment life medicare mobility planning power power wheelchairs quality of life speech wheelchairs
- Replies: 0
- Forum: Newly diagnosed
