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  1. M

    mrs70

    You are here Home » Blogs » mrs70's blog Slow but relentless progression of PLS Submitted by mrs70 on Fri, 03/10/2017 - 15:26 Hi, I just found this site today and am glad to have found you. I was diagnosed with PLS in 1998. So, I have been living with it a long time. It's been slow, but...
    • mrs70
    • Thread
    • afo ankle back balance diagnosed falling foot hip life life is good muscles power power wheelchair progression reading transfer wheelchair
    • Replies: 5
    • Forum: New members
  2. F

    Advice for those who have ALS

    When I first got on this site, I read the posts on the, "Do I have ALS?". I found that reading these posts made me angry because most have symptoms that could be other illnesses or nothing to really worry about. There is a lot with anxiety issues. These people have a right to post on this...
  3. C

    18 and scared

    Hello! First, I want to thank anyone on this forum who help us scared people. I wish everyone on this forum well :sad: I'm a 18 yo female. Since Christmas 2016 I experienced shaking in my hands. On the New Year's Eve (morning) I felt I couldn't deal with it anymore so my mom brought me to the...
    • cristina
    • Thread
    • advice back christmas cold emg female foot headaches ice medicine pressure reading running sad scared shaking sleep spasms stress symptoms tongue twitches twitching wanted weakness
    • Replies: 2
    • Forum: Could this be ALS?
  4. P

    Im scared and worried!!!!

    Hi everyone l would like to say firstly im really sorry that l am having to post my situation here knowing the amount of pain and stress that most are going through, l have read the stickies time and time again but now just cant help myself:( A few weeks ago l was experiencing pain in joints...
    • phaetonv8
    • Thread
    • als anxiety back book bulbar bulbar onset clinic clinical emg family life medical muscle muscle pain neurologist onset pain reading sad scared speech stress stupid swallowing swallowing issues symptoms test tests tongue twitches update voice weakness worried wrong
    • Replies: 17
    • Forum: Could this be ALS?
  5. S

    Are these bulbar symptoms

    Hello, I have a question about bulbar onset ? For the past 10 days, off and on through the day (usually when active or excited) the back of my throat feels clenched the more I talk, and I get a lot of post nasal drip the more I talk too. I thought hypernasality, but I tried the mirror challenge...
    • Snb1987
    • Thread
    • ability arm back bulbar bulbar onset bulbar symptoms fasciculations heaviness lift muscle muscle wasting nose onset paralysis reading swallow symptom symptoms tongue trip twitches twitching work
    • Replies: 1
    • Forum: Could this be ALS?
  6. R

    Pls help, fearful

    Hi everyone. Here is yet another twitch question. I read the stickies I still have a question regarding twitching. I have twitching 95 percent of the time in the back of both calves. Sometimes I will get a twitch here and there in buttocks or arms.. but mainly in calves. I had them for 17 days...
  7. J

    Newly Diagnosed Mom

    Hi Everyone, As much as I'd rather not be here, I am. My mom was just diagnosed this week with limb onset ALS. We previously suspected it in December, so I created my profile back then and have been reading as much info as possible on here. Now it's unfortunately confirmed. I look forward to...
    • jennska
    • Thread
    • als back diagnosed info newly diagnosed onset reading support
    • Replies: 5
    • Forum: Newly diagnosed
  8. N

    Questions

    First I wanted to say I’ve been lurking for the last month or so and I’m humbled by the challenges faced by the people on here and also how helpful everyone is. I read the sticky and I still feel compelled to ask what you think of my symptoms. With the understanding of course, that you all...
    • Natureboy
    • Thread
    • christmas clinical cramping early early symptoms emg fasciculations go away helpful kids lead mri muscle muscles questions reading stiffness symptoms wanted weakness work
    • Replies: 1
    • Forum: Could this be ALS?
  9. P

    Apologies and fasciculation question

    Hi I joined this forum last year then forced myself to stay away to try and control my anxiety. I received a very helpful response to my question about symptoms in my leg, a response that eased my mind considerably, as I could still do many of the things that were mentioned. IIRC they were...
    • pleasehelp
    • Thread
    • age als atrophy back diagnosis diet driving early family fasciculation fasciculations foot drop helpful hope info information muscle muscle weakness muscles neurologist night pain problem reading shoulder stop working stress stupid surgery symptom symptoms tests twitching weakness weight loss young
    • Replies: 8
    • Forum: Could this be ALS?
  10. H

    fysiotherapy YES it helps (in my case)

    I have no arms and legs functonality, but speaking, swallowing and breathing is no problem yet. I was diagnosed with ALS in April 2014. Since then I have FT 2x half an hour in a week. Plus several "hulpmiddelen" ( things, equipment that support and help, (cannot translate)). Now I am using a...
    • henkvrielink
    • Thread
    • als book breathing diagnosed equipment problem reading support swallowing
    • Replies: 2
    • Forum: Stories of hope
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