relative

  1. B

    EMG question

    First of all i want to express how much i respect all of the PALS and CALS in this forum. Thank you all very much for being very helpful and supportive to many people. I am 22 years old, female and no relative (as far as i am concerned) with a diagnosis of ALS. I have noticed atrophy in my left...
  2. Janis J

    conservation of energy: Spoon Theory

    There have been several comments lately about new PALS getting tired easily and CALS having a hard time convincing them to conserve energy. Shortly after my husband was diagnosed a relative told him about spoon theory and it changed his outlook. A search shows this has shown up in the forum...
  3. lgelb

    Early BiPAP

    While not conducted in ALS, this small study of healthy volunteers, complemented by work in some of the other dz states mentioned below, suggests that early BiPAP might help protect neurons. BDNF administration was tried and failed in ALS, but seemingly for reasons more related to the...
  4. B

    Twitching 9 Years

    Hey everyone, I've been twitching for nine years. No weakness at all, and went to a neuro and was cleared back in 2008 after a few follow up appointments. However, since that time I had a fourth degree relative and my mom pass from what was thought to be ALS. My mother was 61 and my great-aunt...
  5. B

    What Can I Do?

    Hello all, First I wanted to give you guys a little background on myself. I am 27 years old and recently lost my mother to what was first diagnosed as an autoimmune disease ( it appeared to respond to treatment ) but then her condition worsened greatly and she passed away. Five days before her...
  6. K

    Dad newly diagnosed

    My father is 72, and until about a year and a half ago was extremely active. Walked his dogs every day for about 2 miles, rode his bike, volunteered, worked... He started with a bad back, diagnosed with scoliosis. Then it seemed like everything happened at once. His speech started slurring, his...
  7. F

    ALS and living alone-concerned

    Hi everyone, I had the contractor come out to give me a bid on remodeling my bathroom to make it wheelchair accessible. Not surprisingly, it is very costly. I live alone and am processing all my options. I've lived in my house for 21 years and would really like to stay here. Right now, I'm...
  8. MindfulMeditator

    Twitching That Stops When Flexing or Stretching

    I've been holding off on posting here for over a month, content with silent lurking, following the suggestions to look at the aboutbfs forum, trying to glean what I can from various threads. I'm convinced my symptoms are slightly more on the MND side than most of the panickers I read. For...
  9. C

    Looking to buy tobii equipment

    Hi, I'm looking for Tobii equipment for a relative with ALS. If you are looking to sell please let me know. Cris
  10. P

    Frightened about hoarseness

    Hello I'm 24 years old. In November 2015, I started to complain of strange symptoms: pain and stiffness in the ankles, wrists, strange feeling and some kind of pains in the fingers, also I started feeling some muscle twitching. I also started to feeling forearms stiffness. I also felt some kind...
Back
Top