relative

  1. D

    Unsure and confused

    Hello, I have read the sticky and I won't waste anyone's time Here it is. 47 yr old male First symptoms started mid July 2014: Extreme fatigue over a weekend, could not stay awake, weakness, pain, cramping in right leg, tried to be normal -- which for me involves a lot walking. Started to...
    • dave8
    • Thread
    • atrophy back burning clinical confused cramping cramps disability emg fatigue fingers foot meds mnd muscle night pain physical therapy relative sleep spasms stress swallowing swallowing issues symptoms therapy twitches twitching unsure vision weakness work
    • Replies: 4
    • Forum: Could this be ALS?
  2. 4tloml

    Is cough syrup w/codeine safe?

    We all got flu shots, but my PALS has the flu. Came on suddenly last night with coughing and fever. He always uses the auto-servo bipap at night, Trilogy on and off throughout the day as needed and cough assist morning and evening. He takes Mucinex 12 hr morning and night and does breath...
  3. A

    tracheotomy and intestinal gas

    Hi, My relative just had a tracheotomy. Right after the operation, he complains about stomach discomfort such as feeling full, farting a lot, and pain under the last rib cage and navel area. He is worried that there is some wrong with the operation. Does any one have any insight on this...
  4. J

    Dad out in the Cold

    A couple of months ago I had my young children help me take the "Ice Bucket Challenge." Their laughter after the icy water hit me is something I'll never forget. The sheer joy in helping their dad and seeing my reaction was priceless. Here we are two months later though and I'm dealing with my...
    • JakeinGranger
    • Thread
    • abdomen advice age als anxiety back bulbar bulbar onset children clinical cold dad diagnosis emg fasciculations friend hope ice life medical muscle muscle twitches onset problem progression questions reading reflex relative second opinion shoulder story stress symptom symptoms tests twitches twitching weakness work young
    • Replies: 20
    • Forum: Could this be ALS?
  5. D

    recommend a speech-generating device

    Hi, I'm considering purchasing a speech-generating device for a relative, but have no idea which one to choose and am hoping somebody here can help me decide. The person in question is almost completely incapable of verbal communication, but her comprehension skills are 100%. She has almost no...
  6. Nikki J

    FAQs about Familial ALS (FALS)

    Frequently asked questions about Familial ALS (FALS) My relative had ALS. Am I at risk? If it was one relative the answer is generally "no". The exception to this is if you also have, in the same bloodline, a relative with unusual dementia, especially younger onset and especially frontal...
    • Nikki J
    • Thread
    • advice als back children clinical dementia disability fals familial familial als family family member ftd genetic guilt hope insurance life insurance long term care insurance medical questions relative research risk symptoms testing worried wrong
    • Replies: 0
    • Forum: Familial ALS (FALS)
  7. B

    How swallowing liquids is difficult with ALS?

    HI, I have been having fasciculations for over 7 (now I a 29) years. Last follow-up with a neuromuscular specialist was 2 months ago, specifically aimed at bulbar region - all fine. But after I noticed that a relative of mine (who too has fasciculations but is very, very old) choked on liquids...
    • Bliz
    • Thread
    • als als? anxiety book bulbar choking coughing dysphagia family fasciculations problems relative scared swallowing worried worries
    • Replies: 17
    • Forum: Could this be ALS?
  8. M

    Can I rule out ALS?

    For the last 3 weeks or so, I've had oropharyngeal dysphagia and have been having trouble eating breakfast cereal and chips like Funyuns. Today, though, as if by magic, I can suddenly eat Funyuns and cereal with relative ease. I'm still having some slight trouble with other foods -- french...
    • mikef22
    • Thread
    • als als symptoms als? back dysphagia eating problem relative swallowing symptoms
    • Replies: 6
    • Forum: Could this be ALS?
  9. D

    Newbie - question

    Hi all. I'm new to this whole thing, and I'm looking to see if anyone can give me some insight as far as what I can expect in the days/weeks/months to come. My dad was diagnosed the end of May of this year, and since his diagnosis, this terrible disease has progressed quite rapidly with him...
    • DanielleP
    • Thread
    • arm assisted living back bed bipap breathing dad diagnosed diagnosis hospice morphine newbie night nurses relative scared sleep speech wheelchair
    • Replies: 2
    • Forum: General discussion about ALS/MND
  10. A

    is there a way to reduce mucus/saliva production? and regarding papaya tablets...

    Regarding papaya tablets, for those who have had success with this method of grinding down the tablets to break down thick saliva, what were the amounts (in milligrams) of papain and bromelain? And, if possible I'd like to know what brand and the product name. My relative has some thick mucus...
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