research

  1. lgelb

    Biogen picks up Ionis SOD1 treatment option

    This is important not just for advancing SOD1 tx, but establishing another case where a smaller firm (where a lot of ALS work is being done) has successfully handed off a therapy to a larger firm. This helps incentivize ALS research. ---- [Adapted from Seeking Alpha] Having seen positive...
    • lgelb
    • Thread
    • age als als research biogen data early milestone research sod1 therapy treatment work
    • Replies: 1
    • Forum: Research and trials
  2. A

    warning about power hoyer lift

    my hoyer lift stopped with me in the highest point. We had not bothered to find the Manuel override. It was not obvious and took research to figure out as the company is out of business and no online manual could be found . it was torture to get me down, but would have been unnecessary if we...
  3. Q

    To anyone my age worrying, I want to re-assure trust these experts and stop worrying

    To anyone my age worrying, I want to re-assure you trust these experts and stop worrying. If you look through my posts, I was in a absolute panic about ALS. I now know I 100% do not have ALS. I am embrassed I was in such a panic mode about this, and troubled the brave caring souls here. To...
  4. J

    Numbness, muscle twitching, and no diagnosis? Read this.

    This post is for those who are currently experiencing numbness and muscle twitching and, like me, tend to automatically assume the worst case scenario. I felt compelled to write this a year and a half after first experiencing neurological issues because #1, it seems that a lot of folks who...
    • jambo6
    • Thread
    • als research arm back brain diagnosis early fatigue fingers insomnia muscle muscle twitching no diagnosis pain pressure research story stress swallowing symptoms tests twitches twitching twitching arm undiagnosed weight loss
    • Replies: 1
    • Forum: Could this be ALS?
  5. opusensemble

    I guess this is for real

    Dear friends, My story so far was an impressive story of fight for survival. 5 years ago I had a severe adverse reaction to an antidepressant and became bedridden and in extreme suicidal agony for 4 long years. My research was too incredible and extense to condense in a thick collection of...
    • opusensemble
    • Thread
    • age atrophy back depressed diagnosis emg fasciculations fingers free go away hope hyperreflexia muscle problem progression research slurred speech speech stiffness story stroke symptom symptoms twitching wrong
    • Replies: 18
    • Forum: Could this be ALS?
  6. affected

    Cognitive and Behavioural effects higher than we used to be told

    I found this article helpful to me. For CALS, dealing with cognitive and behavioural changes is so very difficult, especially as the PALS does not recognise that changes are happening. To see research is revealing the incidence of changes is far higher than we were being told 10 and even just...
  7. S

    please help, too many symptoms matching.

    Dear all, Sorry for the mistakes, I'm French. Sorry for the lenght (also going to blame it on the french origin ^^) First of all, i want to express all my love to those suffering with ALS. I know how frustrating it can be for someone who has got diagnosed to see ‘healthy’ people not fully...
    • shine81
    • Thread
    • als arm awareness back bulbar burning clinical cramps cry emg fasciculations fatigue fingers hope muscle pain please help research sad swallowing symptoms test tests tiredness weakness
    • Replies: 23
    • Forum: Could this be ALS?
  8. T

    I Mean No Disrespect But Have A Few ?'s

    For the past month I've had Fasculations that started in my lips which didin't scare me just concerned me. Then I started getting fasculations in both my calves which last 24/7 It's like someone is playing a piano on my calves. at this point I started to google and it said BFS or ALS. So For...
    • Twiztidtragedy
    • Thread
    • als anxiety atrophy bfs burning cold emg eye fear night research sleep symptoms twitching weakness
    • Replies: 43
    • Forum: Could this be ALS?
  9. D

    Tick all the boxes? Hoping for the best planning for the worst!!

    Hi my name is Daniel, I dont know if I have ALS but reading your posts / threads have helped me significantly on processing everything that has been happening to me in the last month and reading about your strength and sometimes humour during adversity only gives me strength whatever my future...
    • dphk77
    • Thread
    • als atrophy back burning clothing depression diagnose diagnosis early emg fasciculations fatigue fingers hip lead mnd muscle neurology night research story stress stroke symptoms symptoms info / advice twitches
    • Replies: 10
    • Forum: Could this be ALS?
  10. D

    Access to Published Papers

    Looks like we are denied access to most published papers. Since it seems that a number of these papers are the result of grants from the ALS Association/Foundation I think those of us with ALS should have free access and not be required to pay the exorbitant prices to get a research paper.
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