research

  1. D

    Research update MND Australia

    https://www.mndaust.asn.au/Documents/Research-documents/International-Research-Updates/MND-Australia-research-update-0915.aspx
  2. lgelb

    Resource Second opinions and first clinic visits

    Do you really have ALS? A diagnosis of ALS or any other motor neuron disease (PLS, PMA, PBP, MMN) is made “by exclusion” (no higher probability presents itself) and by published criteria, most critically symptoms and muscle/nerve tests. Doctors may legitimately differ on whether you have...
    • lgelb
    • Thread
    • als als clinics alsa atrophy bipap caregivers dementia diagnose diagnosis disability exercise eyes free hospice hours lung capacity medical mmn mobility mucus orthosis power research second opinion sleep speech suction symptoms tests weakness wheelchair wrong
    • Replies: 1
    • Forum: Resources
  3. Mtzu

    Tradition of Hope

    Last night Andrea and I attended the Augie’s Quest Tradition of Hope Gala at the Beverly Hilton Hotel. The food was great, the entertainment was spectacular, and most important we met many wonderful people who are very dedicated to finding a cure for ALS. Last night over a million dollars was...
  4. V

    Nuedexta

    This was on the front page of News "CNS is pleased to report that the recently completed Nuedexta ALS treatment trial was a resounding success. The nationwide study, conducted at seven NEALS research sites, convincingly demonstrated that Nuedexta can enhance speech and swallowing in ALS...
    • Vikman
    • Thread
    • ability als nuedexta research speech swallowing treatment trial
    • Replies: 22
    • Forum: Research and trials
  5. G

    JHU discovery regarding C9Orf72

    http://hub.jhu.edu/2015/09/23/als-dementia-research The research shows that the most common known risk factor for ALS and frontotemporal dementia, or FTD—a gene mutation known as C9orf72—causes cellular highways to jam, impairing brain functions. However, in tests with human and fly cells, the...
  6. C

    Mother in law newly diagnosed with bulbar onset

    Hi, my mother in law is in her mid 50s and after a couple months of tests has been diagnosed with bulbar onset ALS. My in laws told my husband and I on Monday in their home and my husband is not talking about it or really acknowledging it since and Im concerned. Ive told him we should go over...
    • cam54
    • Thread
    • ability advice als bulbar bulbar onset coping denial diagnosed newly diagnosed onset research slurred speech speech tests
    • Replies: 7
    • Forum: Newly diagnosed
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