research

  1. KimT

    Pulmonary Function Tests

    It's only me again. I had a pulmonary function test at Mayo three months ago and one at U of F (Shands) this week. Mayo didn't include the raw data and Dr. Pulley wanted to do one of his own. It looks like U of F doesn't do specific tests of respiratory muscle strength and Mayo does...
  2. G

    well this is strange

    hello all. Not sure what to make of what is going on here. first twitching started in my calves and spread all over my body in a matter of days didn't think anything of it but went into the doctor to have it checked out went through several blood tests including lime and vitamin levels and...
    • gogetter
    • Thread
    • advice anxiety father life love muscles onset pain research shower spasms symptoms tests thumb twitching voice worried worries worry
    • Replies: 13
    • Forum: Could this be ALS?
  3. L

    Questions about bulbar onset

    Like many here, I come seeking advice. I have read all of the stickies and tried my best to "research" what I can about ALS. (I am a junior high science teacher, and the lack of answers and knowledge about the pathogenesis, etc. is baffling to me. But I should keep this short). Sorry). About...
    • LeaMoore
    • Thread
    • als arm atrophy back breathing problems bulbar bulbar onset clean emg clonus crying depressed early emg exercise fasciculations muscles nose onset pneumonia research shoulder story swallowing swelling symptoms test twitching weakness
    • Replies: 13
    • Forum: Could this be ALS?
  4. A

    Creatinine Ratio

    My husband just got some lab results back and of course it is Saturday so we cannot call the doctor. I did some research and if I am reading correctly the results have to do with heart disease and renal failure depending on the site. It reads BUN/Creatinine Ratio 8 . Flag low. His ldl...
  5. M

    Unapproved ALS Drug

    im taking a medicine that is new and not approved, it hasnt been thru clinical trials yet. its called RCH4 Peptide and ive been on it for 9 months. my als has not progressed and im a bit improved. my fingers are moving more (i realize 'more' is a subjective term. in march when my hands were at...
    • mich5
    • Thread
    • age als clinical cost fingers foot friend information medicine money movement pneumonia questions research saliva tobii tongue website
    • Replies: 85
    • Forum: Research and trials
  6. Nikki J

    Gene blocking trial. Sporadic ALS can be part of it

    There is a SOD1 gene blocking trial getting ready to enroll. You do not have to be SOD1 FALS to enroll. Apparently research has shown in the lab that lowering sod1 levels in SALS seems to be helpful! https://clinicaltrials.gov/ct2/show/NCT02623699?term=Amyotrophic&recr=Open&cntry1=NA%3AUS&rank=2
  7. H

    ALS biomarker protein findings

    From KTH, Sweden:
    • hellspawn1
    • Thread
    • als breathing death heart ice increase life medical movement muscle muscles paralyzed research support swallowing technology treatment treatments work
    • Replies: 4
    • Forum: Research and trials
  8. S

    Not sure what to think

    **Sorry for the length, I didn't realize how long it got until I hit preview.** I have read thru the sticky's and know that what I am experiencing is likely something different, and I really hope I am in the wrong place. I have been reading posts for the last week and finally got up the courage...
    • Sprawl
    • Thread
    • arm brain breathing chair emg fingers hope immediately info kids motor neuron disease mri muscles neurologist neurology night physical therapy questions reading reflex research story swallowing test tests twitching veteran wrong
    • Replies: 38
    • Forum: Could this be ALS?
  9. K

    reality bites

    It is time for me to move from do I have als/mnd to another forum however I do not have a specific diagnosis as of yet, to explain which I am confident most or all of you will understand my 4 emg's and clinical exam cannot be denied. I went in November 18 th for a fourth emg it is always an...
    • Kerbear
    • Thread
    • als biopsy clinical cure diagnosis do i have als emg lonely mnd muscle muscle biopsy pls research shoulder support testing umn
    • Replies: 6
    • Forum: Newly diagnosed
  10. O

    Research- recording memories and messages for children

    Hello everybody, My name is Olly and I’m currently a PhD Researcher at Edge Hill University in Ormskirk, Lancashire (UK). I have a specific research interest in young people who help care for family members who have ALS, and also those young people who are bereaved due to the disease. I have...
    • Olly2015
    • Thread
    • als children conversation dad diagnosed digital family information legacy planning research video young
    • Replies: 0
    • Forum: Research and trials
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