research

  1. G

    Treeway

    Interesting. This outfit has 3 ALS treatments in the pipeline. Treeway Pipeline - Treeway One, TW001, is a mod of the recent drug approved in Japan, edaravone. They state it should hit the market in 2017. Treeway’s pipeline is anchored on the role of immunology and inflammation in the disease...
    • GregK
    • Thread
    • age als clinical cure early edaravone fda holiday immune increase preparation progression research risk stress stroke therapy treatments
    • Replies: 3
    • Forum: Research and trials
  2. S

    In Michigan for opinion number ... six?

    Hi all, As I've mentioned here before, I've been trying to pin down a definitive diagnosis for the past two years or so. I was diagnosed with hereditary spastic paraplegia at Houston Methodist, but I don't have a family history or clear genetic evidence. My symptoms have changed a lot...
    • Suzannah
    • Thread
    • conference diagnosed diagnosis family family history genetic hsp ice nih paraplegia research symptoms
    • Replies: 11
    • Forum: Primary lateral sclerosis
  3. A

    Searching for an answer

    Hello everyone. I am here because I am worried about a diagnosis of ALS. I have recently been down a long road of finding out what is "wrong" with me. I am a 25 year old female and things started for me about 1 year ago. I started having very bad headaches and I eventually was scheduled for an...
    • Annag13
    • Thread
    • als als? anxiety back biopsy brain diagnosis female fingers headaches health mri only symptom research symptom symptoms worried wrong
    • Replies: 7
    • Forum: Could this be ALS?
  4. Nikki J

    Facebook group

    For those of you who have not yet found it there is a group that posts research articles on MND there is probably more on PLS and HSP than ALS If you are interested either indicate below or pm me and I will pm you a link. It is a closed group and once you ask to join expect a pm ( check message...
  5. N

    Far worse than ALS alone

    I wanted to share this to inform you that there are things far worse than ALS alone. I was diagnosed two years ago; I am 31 years old now. Currently, I cannot use either my arms or my legs in a useful way, controlling my pc using a head tracker. I met my wife ten years ago when we were both...
    • Nadir
    • Thread
    • abuse als back communication dad depressed divorce family father hearing holiday ice money never give up night research sad stem cell stupid support symptoms tracker treatment trial wanted wheelchair
    • Replies: 8
    • Forum: Off topic everything
  6. gooseberry

    swallowing,fvc,peak flow study

    Today Steve participated in a research study. It involved a swallow test, pft, cough test with audio and video recordings, a mental fitness test and a rating scale. The idea is to try to find a portable and simple measure that can be used to assess swallowing and potential for aspiration. It...
  7. N

    Thank You - and musings on ALS Phobia, from an MD

    I've been reading the forums, specifically the DIHALS threads, for 15 months now. My ALS scare lasted 9 months and nearly shut my life down completely - but I've rarely ever thought about developing ALS myself over the past 6 months. I am an actively practicing Internal Medicine MD. I made a...
    • NeoMD
    • Thread
    • als als? bulbar bulbar onset cure depression diagnosis dihals early emg exercise exhaustion fasciculations finger friend medical medicine muscle neurologist onset pain quality of life reading research support symptoms testing tests tongue weakness
    • Replies: 11
    • Forum: Could this be ALS?
  8. Nikki J

    The story of Dr Bedlack's tattoo

    I heard a shorter version of this in an interview with him a couple of years ago. This is more detailed. It is shared here with his permission My name is Rick Bedlack. In the past decade I have seen more than 1500 patients here at Duke with ALS. Tonight I will tell you about one who left a...
    • Nikki J
    • Thread
    • ability als als research arm back bipap clinic death eye familial familial als money muscles onset research respiratory respiratory failure stem cell stem cell research story swallow symptom tattoo wanted weight loss wrist wrong
    • Replies: 9
    • Forum: Stories of hope
  9. D

    LED lights stimulating muscles

    Blue LED lights stimulating muscles to return function Dalhousie medical school research might help ALS suffers - Nova Scotia - CBC News
  10. S

    Going to NIH for research study

    Hi all, As my title suggests, I am headed to the NIH (National Institute of Health) on Monday to take part in a research study on inherited neurodegenerative disorders. My current diagnosis is hereditary spastic paraplegia, but I have no family history of it and my symptoms don't really...
    • Suzannah
    • Thread
    • diagnosis family family history fell foot health lift meds night nih paraplegia research scared symptoms trip
    • Replies: 5
    • Forum: Primary lateral sclerosis
Back
Top