research

  1. chally

    Big show

    Well this week is big for me and my cals. We have been actors& dancers our whole lives so far and have no intentions of stopping just because of a little old " nightmare" . We will be in tech& dress rehearsal all week for an up coming show called "Chally's Follies" at our theatre house. My...
    • chally
    • Thread
    • als research cals cure love pwc research work
    • Replies: 38
    • Forum: Stories of hope
  2. P

    Research to Aid the ALS Community -- Please help!

    Hi all, We're a team of students at Penn State University in State College, PA. For our senior design project, we're trying to prototype new software/hardware to give emotions to the artificial voice assigned to ALS patients when they can no longer speak. To design something that aids all of...
  3. A

    MND or BFS?

    Hello guys, have heard great things about this forum so I thought I'd give it a try. It started in December with an eye twitch, but now I am experiencing some widespread muscle fasculations. Mainly in both calves, but it's anywhere from my bicep, neck, face and abdomen. It lasts maybe a minute...
    • Alsorbfs
    • Thread
    • abdomen bfs emg eye mnd mri muscle neurologist research twitch weakness
    • Replies: 2
    • Forum: Could this be ALS?
  4. C

    Project on ALS.. Looking for information.

    I by no means want to disrespect anyone who is suffering on this site. I do not think I have ALS either like others who post on this site. I am simply looking for information. The paper I'm writing is worth 60% of my overall grade in my graduate class. I'm also currently typing on my phone so I...
  5. T

    Final Arrangements

    wow, how awkward to make final arrangements for a spouse. Talk about the last thing I wanted to do in life. He is adamant that his body go to science, ALS research like his mother and grandfather before him. Dr. Pioro at the Cleveland Clinic took charge of his mother and now my husband. These...
    • turnip
    • Thread
    • als als research back brain clinic conversation life love research wanted
    • Replies: 19
    • Forum: Current caregivers
  6. J

    Help finding a PLS specialist or leading researcher

    In December, my husband was diagnosed with PLS by Dr. Stanley Appel at Houston Methodist. We really liked Dr. Appel, but my husband is worried he is getting worse. He was running a half marathon in June, but is now walking with a cane and has had a dozen falls. He recently is complaining of...
    • jdg222
    • Thread
    • advice als? back baclofen brain caregiver clinical diagnosis emg free frustrated hope mri new caregiver physical therapy pls questions research running second opinion swallowing test unknown video vitamins wanted worried
    • Replies: 28
    • Forum: Primary lateral sclerosis
  7. C

    Got the dreaded news...

    Hello, I posted on here a month or so ago under the "do I have ALS" section. Well I'm back as a full fledged member, I guess, I got my ALS diagnosis one week ago. I had the nerve conduction study January 18th and the neurologist told me immediately when he was finished. Although he said...
    • CarolSue
    • Thread
    • als arm back chair choking clinic cramps diagnosis do i have als early fell female info muscle muscle twitching neurologist onset progression reading research rilutek support symptoms test tests twitches twitching
    • Replies: 20
    • Forum: Newly diagnosed
  8. C

    Invitation to Participate in an ALS Caregiver Survey

    Dear fellow caregivers, this is an invitation for adult caregivers (18 years and older) who currently provide care to their loved one with ALS to participate in this important survey research! Please click on the link below to the survey, which will take about 20-30 minutes to complete. Thank...
  9. D

    Brother Has ALS

    Recent article so I found interesting, has anyone tried this? my brother is in total denial of his diagnoisis of ALS and I would like to offer some hope to help him come to terms and accept his diagnosis so he can get the help he needs. Tuesday, January 12, 2016 12:14PM SANTA MONICA, Calif. --...
    • Dkgk
    • Thread
    • ability als boston brother cell clinic denial diagnosis health hope improvement lou gehrig's disease medical movement progression research stem cell stem cell research stem cells story therapy treatment
    • Replies: 4
    • Forum: Newly diagnosed
  10. C

    Respiratory/bulbar onset?

    Hey guys the name is Carson I'm 27 male I'll be 28 on Halloween this year and I'm from Phoenix Arizona and I've been dealing with some things that have concerned me. Started off with body wide twitching been going for 10 months straight now and shortness of breath which I noticed more when...
    • Cpalmer
    • Thread
    • atrophy back bed bulbar bulbar onset clinical cramping emg fatigue muscle muscles neurologist onset pain research respiratory respiratory onset shortness of breath symptoms twitching
    • Replies: 14
    • Forum: Could this be ALS?
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