research

  1. M

    Worried may have ALS

    Hi Everyone I am very new to this forum, but I thought that writing about my current difficulties on here would be a cathartic experience. From reading previous posts on here, it does not seem that my experience is a unique one. Let me please give you first some background, which will...
    • Monty1973
    • Thread
    • abdomen abdominal als burning choke clinical cramping cramps early eyes fasciculations fingers muscle muscles music neurologist onset pressure research sleep speech swallowing symptoms test tremor twitches weakness
    • Replies: 4
    • Forum: Could this be ALS?
  2. S

    Looking for advice

    February 20th I noticed a twitch/spasm where my arm meets my shoulder, which was on and off for the next few hours. I was laying in bed when I first became aware of the situation, went to the mall to distract myself and it sorta worked but the spasm/twitches where still present. I figured it...
    • Spaccion
    • Thread
    • abdominal abuse advice arm atrophy back bfs eyes fasciculation fibromyalgia go away hours info mnd muscles neurologist pain progression research shoulder spasms stiffness stress symptoms tests twitch twitches weakness
    • Replies: 6
    • Forum: Could this be ALS?
  3. B

    Twitching and Anexity

    One year ago, I noticed fasciculations in my calves, which then spread throughout my body! My legs would cramp up, I felt like I was getting weaker, would constantly search for atrophy, my anexity went through the roof, people close to me thought I was having a breakdown! I seen a bunch of...
    • Bostonjimmy
    • Thread
    • als als research atrophy bfs breakdown cure emg fasciculations muscle research tests twitch twitches twitching weakness work
    • Replies: 1
    • Forum: Could this be ALS?
  4. C

    if someone could give their thoughts

    15 weeks ago has noticed I slurred a few times. This when was I talking a word here and there. then again a few weeks later-not anymore that I recall . No one has mentioned it to me. Then 10-11 weeks ago I began to have stiffness arms and calves. It went away in a few weeks. I have felt off...
    • Cattl
    • Thread
    • als als research back bulbar cell clinical eating emg family fear foot mri neurology problems research stem cell stem cell research stiffness swallow symptoms twitch voice weakness worried
    • Replies: 3
    • Forum: Could this be ALS?
  5. Green Queen

    Just Me and My Undiagnosis

    Well. Where do I start? I came here one year ago, almost to the day, whilst awaiting a firm diagnosis of PLS. 6 months later, I received that diagnosis. I was very happy to have an answer, though it never really sat right with me. I had done too much reading, too much research and asked lots of...
  6. starente15

    Question for you Pete

    I know someone whose family is affected by FALS. They have a running team that raises money for ALS Research and are running a half this weekend in my father's memory. I keep wondering how I can I make a difference/feel like I'm doing something positive myself. My running skills are really bad...
  7. A

    New Member

    I am new to this. My sister was diagnosed with ALS November 2014. She has the bulbar type. Her first symptom was tiredness, then her speech was slurred and now she has no speech at all. Is there any research in New Zealand that she could be a part of? Her anywhere in the world for that...
  8. T

    Referred to neurologist

    Dear ALS Community, I've been having trouble with my index finger and thumb for about six months so I recently went to see a hand doctor. To my extreme surprise, she said my issues are likely related to the central nervous system and that I need to see a neurologist. Of course I was shocked as...
    • tokyobridge
    • Thread
    • ability als finger motor neuron disease movement neurologist pain problem problems research risk shaking thumb tremor weakness
    • Replies: 2
    • Forum: Could this be ALS?
  9. B

    newly diagnosed, a few months after spinal cord surgery

    Hello all and thanks for being there. I was diagnosed two days ago. My particular mystery is that i had the beginnings of ALS symptoms concurrently with an ependymoma tumor in my lumbar spinal cord and also crooked neck bones and a herniated disk in my neck. I am 59. Neurologists had a hard time...
    • BetsyB
    • Thread
    • advice als als symptoms arm back balance brain diagnosed diagnosis fasciculations free immediately information medicine mri neurology newly diagnosed problems research support surgery symptoms transfer treatment weakness
    • Replies: 12
    • Forum: Newly diagnosed
  10. J

    Don't believe I have ALS

    Hi, I am new to this forum. I was told last Wednesday that I have ALS but believe I have been misdiagnosed. My story. I began having spasms in my right hand of the ring finger and pinky finger in August 2014. At that time I did notice difficulty in walking but attributed it to the fact I had...
    • Judy08
    • Thread
    • als als symptoms ankle arm atrophy denial emg finger ice mmn muscle muscle weakness neurologist research ring finger spasms story symptoms test weakness work
    • Replies: 7
    • Forum: Could this be ALS?
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