sleep

  1. S

    New caregiver

    So sad. Husband diagnosed end of December. He's very used to being in charge and making all the decisions. I am a RN/NP. So I know a bit about caregiving. He fights me on all the ways to do things. Slowly he is beginning to listen to me but it's frustrating. I only seem to cry when...
    • Stacygol
    • Thread
    • anxiety back caregiver caregiving cry diagnosed equipment meds new caregiver night respite sad sleep worry
    • Replies: 8
    • Forum: Current caregivers
  2. T

    Symptom Questions from 35/m

    Hello, I hope you are well or as well as possible. Thank you for checking this thread and thank you for making this section of the forum. It must be very difficult for some members. Your patience for those of us with questions is greatly appreciated. I've refrained from ALS symptom-checking on...
    • trysmiling
    • Thread
    • als arm fingers holiday hope muscle muscle fatigue neurologist night onset progression questions running shaking sleep stress surgery symptom symptoms timeline tremor wanted weakness weight loss wrists
    • Replies: 11
    • Forum: Could this be ALS?
  3. J

    Neudexta

    Hello everyone, I was wondering if neudexta is safe to take for an als patient that doesnt have pba. Ive managed to get the medication from someone in the states. My pals is taking amitriptyline pills and cbd oil both for sleep and to help with mucus problems. she is having difficulty talking...
  4. D

    Ear “throbbing”

    Left ear seems to be quite often “throbbing” a little. I have worn hearing aids for several years and have occasionally had this feeling, but not this often and for this long. Could this be ALS related? This kept me up for some time during the night. Could not get back to sleep for awhile.
  5. K

    Waiting on Neuro, scared.

    Hi, Thank you in advance for your time. I've read many of the posts here and I am in a similar situation. My grandmother died at age 76 from ALS, and it has given me a lot of anxiety over the past 10 years related to it. I also had a more distant relative (a cousin of my father) who I believe...
    • Kinabe
    • Thread
    • age als anxiety clinical familial family family history father fear health heart muscle muscles relative scared shoulder sleep story tongue twitching weakness
    • Replies: 11
    • Forum: Could this be ALS?
  6. R

    Worsening Symptoms and Second EMG

    Previous thread: Terrified Bulbar or Limb Onset? Varying Symptoms Sorry for posting again, but I've been having daily crying spells. I've tried to stay off the internet researching my symptoms, since the last time I posted my "Central Sleep Apnea" has seem to resolve after a few rounds of...
    • rockyman01
    • Thread
    • atrophy bfs brain bulbar burning calf atrophy canada clinical crying emg fatigue mnd mri muscles onset professor sleep sleeping pills symptoms twitching weakness work
    • Replies: 14
    • Forum: Could this be ALS?
  7. B

    C9 carrier with possible symptoms

    Hello everyone! This ended up being a very long post so I I'm going to put a tldr at the end for those of you with limited energy. This is my first post here and as a c9 carrier I will likely be lurking around for a while as it is the most comfort I have found so far. I want to say thank you...
    • Boumike
    • Thread
    • arm atrophy bulbar bulbar onset cramping cramps dad emg ftd money muscle twitching neurologist onset pain research sleep slurred speech speech stiffness story symptom symptoms twitches twitching weakness
    • Replies: 7
    • Forum: Could this be ALS?
  8. M

    concern over recent symptoms

    Hi all, First of all, thanks in advance to anybody who takes the time to reply to my post. I am a 32-year-old caucasian man currently living in Los Angeles. My symptoms started about 8 months ago with some intermittent muscle twitching that I noticed on and off in my neck, biceps, legs, all over...
    • Mike1086
    • Thread
    • anxiety back breathing cold cpap cramping diagnosed emg fatigue muscle muscle fatigue muscle pain muscle twitching pain shortness of breath sleep symptom symptoms test turkey twitching voice wanted weakness worried
    • Replies: 0
    • Forum: Could this be ALS?
  9. M

    Concern over recent symptoms

    Hi all, First of all, thanks in advance to anybody who takes the time to reply to my post. I am a 32-year-old caucasian man currently living in Los Angeles. My symptoms started about 8 months ago with some intermittent muscle twitching that I noticed on and off in my neck, biceps, legs, all...
    • Mike1086
    • Thread
    • anxiety back breathing cold cpap cramping diagnosed emg fatigue foot muscle muscle fatigue muscle twitching pain shortness of breath sleep symptom symptoms test turkey twitching voice wanted weakness worried
    • Replies: 5
    • Forum: Could this be ALS?
  10. C

    Body twitches/ hand jerk

    Hi I’m brand new to the board I’m a 52 year old male,and have just one question. I have for the past two months experienced body twitches all over,some in my thighs, calves tricep, rib, buttocks and eyelid . I also had one episode upon waking in the morning kinda half way between awake and sleep...
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