trial

  1. glupavomomiche

    Cough Assist and/or Thumper Vest?

    I saw a pulmonologist last month and he started me on a lot of new meds to try to keep the asthma better under control so we'll have an easier time identifying breathing problems related to ALS. Once I started on those, the crud in my lungs has turned loose like crazy! I let my neuro know and...
  2. L

    Stem Cell Update (NeuralStem)

    FDA Permits Additional Dosing of Return Patients Neuralstem Updates ALS Stem Cell Trial Progress -- ROCKVILLE, Md., May 8, 2012 /PRNewswire/ --
  3. L

    Ted Harada Talks hope and Expediting Trials

    In this article, Ted Harada, the man who experienced improvement and slowing of his ALS after participating in the NeuralStem stem cell trial, discusses his involvement in several important initiatives to expedite research and treatment availability: Give hope to those with ALS *| ajc.com I...
    • Luke
    • Thread
    • als cell free hope improvement research stem cell stem cell treatment treatment trial
    • Replies: 11
    • Forum: Stories of hope
  4. K

    MS Diagnosis in question due to rapid progression

    I am writing just the facts. Not my opinion or feeling. Just the facts. March 2011 Charlie horse in left leg waking me at night April 2011 strange gait and muscle twitching, fatigue, Brain MRI shows lesions atypical for MS, start using cane for assistance. June 2011 MS neuro orders more...
    • Kerri2012
    • Thread
    • advice afo als arm weakness brain children diagnosis emg fatigue foot foot drop health mental health mri muscle muscle twitches muscle twitching power power wheelchair progression progressive weakness rapid progression reading scooter stop working support swallowing swallowing issues symptoms treatment trial twitches twitching walker weakness wheelchair young
    • Replies: 12
    • Forum: Could this be ALS?
  5. R

    Gilenya and Als

    Has anyone heard about the drug Gilenya? Gilenya is approved for MS patients and TDI is considering starting a phase 2 trial on ALS patients to see if it will slow the progression. Has anyone used this drug off label?
  6. LNKa

    Let me introduce

    I think it's polite to introduce before I start posting. This is my first post to this forum however I'm already regular visitor, primary caregiver for my 41y old husband diagnosed 08/2011. Two teenage sons help us to have fun in these terrible months but it's so hard, you know. We are living in...
  7. Sequoia

    Anybody trying Gilenya self trial?

    The ALS Treat Us Now activist volunteer group has one member who just began a self trial of Gilenya. Anybody else trying Gilenya? We are hoping to have 25 new active volunteers join us as we continue to aggressively pursue NP001, CK-357, and Dex for our members...much progress has been made. If...
  8. momap53

    Stem Cell Trial News

    Northeast ALS Consortium (NEALS) The second patient to receive stem cells in the cervical (upper back) region of the spine has been dosed. Fourteenth Patient Dosed in Neuralstem ALS Stem Cell Trial
  9. S

    Choosing an Eye Gaze

    I think there is a very useful lesson here. Anyone anticipating the need for eye gaze device begin your search early before it becomes a necessity. Each major manufacturer offers a free 30 day in home trial. Don't be steered to one particular device by your speech therapist, they don't live...
  10. S

    BIPAP question

    Hi all My mom was als diagnoised in Sep 2010. She is limb onset follow with balbar symptoms,difficult swollowing, choke occasionally, slur speach but so far she is still doing ok. However recently she feels tired and shortness of breath especially when doing things e.g. She has hard time for...
    • set me free
    • Thread
    • advice als back bipap breathing choke free fvc movement muscle night onset problem ramp respiratory shortness of breath symptoms trial vpap
    • Replies: 8
    • Forum: General discussion about ALS/MND
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