trial

  1. A

    Multiple Sclerosis Drug to be tested for ALS

    February 15, 2012 - Received this last evening ALS TDI to Test Multiple Sclerosis Drug in ALS The MDA-supported ALS Therapy Development Institute (ALS-TDI) plans to launch a phase 2 clinical trial of TDI 132, a compound that modulates the immune system Article Highlights: • The nonprofit...
    • apollick
    • Thread
    • als als research clinical clinical trial food immune research test therapy treatment trial
    • Replies: 3
    • Forum: Research and trials
  2. Sequoia

    Let's all ask Biogen to Treat Us Now!

    hello every body! I am amazed that the new treatment Dex. has been around for over 14 years! From phase I to now phase III which won't finish until next December. I am losing muscle in legs, arms, hands, effecting my swallowing, speech, and now breathing. We know how this goes, and it goes...
    • Sequoia
    • Thread
    • alsa biogen breathing cals drugs fda financial hiv kids life muscle progression quality of life speech story swallowing treatment treatments trial
    • Replies: 36
    • Forum: People with ALS (PALS)
  3. Q

    First post, saying hi

    Hi folks, My 1st post. About me: my name is ed. 62 yr old male; born and raised in southern calif. Married for 30 years to my beautiful wife Janice; one daughter, 29 yrs old, one son 24 yrs old. Retired in jan 2010 after 36 yrs with local phone company, at&t (originally pacific telephone...
    • Q-man
    • Thread
    • als arm cals choking diet finger ice peg speech swallowing swallowing issues symptoms trial veteran
    • Replies: 13
    • Forum: New members
  4. P

    dex triaL AND SOME QUESTIONS

    Hi everyone, i have a couple of questions?well maybe 3 questions. My brother is in the process of being diagnosed for als.neuros are 99% sure. He has bulbar symptoms.they say it could pbp.what is the prognosis for pbp? Has anyone heard anything else about the cancellation of the dex...
    • penney21
    • Thread
    • als breathing brother bulbar pbp petition questions symptoms test trial
    • Replies: 19
    • Forum: Research and trials
  5. E

    Cytokinetics Phase II, early success!

    Ralph and I are in the NC Trial and have had similar results. To help every PAL please consider: - Purchase a few shares of Cyto stock to add to your clout when requesting early access. It is only $1.00/share. I bought a few weeks ago at $1.00, now up to $1.08. Who wants to join Ralph/Wanda...
  6. hangingon1

    The Invasion of the Body Snatchers

    When I first learned about ALS because of my wife's contraction of this terrible disease, I did not understand the mental ramifications of her condition. Thinking that ALS was all about nerves being damaged was true enough, but never did I think that it affected the brain and personality too...
  7. marypat

    Hi to all,

    Hi to all, I’ve been visiting this forum for awhile but haven’t posted anything before. As it is January and most people have their resolutions it’s my month of firsts…first time I admitted I’m not going to drive again, the first fall..the first time I used a cart to shop with….the first time I...
    • marypat
    • Thread
    • advice als bulbar clinic dying hope kids life ohio questions research support time to s trial wheelchair work
    • Replies: 16
    • Forum: Off topic everything
  8. A

    What do I do next?

    Hi, I am a 20 year old female who has been suffering symptoms, that, from my research are scarily close to those of ALS. I just want some insight on what would be a good decision for me to do next. It started about 4 months ago, I will list my symptoms in progression - awkwardness walking in...
    • ash-rc
    • Thread
    • advice age als atrophy back cramps early emg female lyme mri muscles neurologist pain research second opinion shoulder swallowing symptoms tongue trial trouble swallowing twitching voice weakness weight loss work young
    • Replies: 5
    • Forum: Could this be ALS?
  9. H

    Heartbroken in NM

    First of all, let me say that I'm so sorry for all of the people here and elsewhere stricken by this horrible ailment. No one deserves the kind of suffering that ALS delivers indiscriminately. My compassion for each of you is even more bolstered by my personal experience. My beautiful wife of...
  10. sadiemae

    Oral Sodium Chlorite

    Starting the mock NP001 trial tomorrow. The mixture is really small. About a Tbsp of the 5% sodium chlorite into 16 oz of distilled water with a pinch of salt and a couple drops of lemon juice. He will be taking 2 tsp twice a day. I am going to take it tonight, just to see what the side...
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