unknown

  1. K

    Extreme dysphagia, diagnosed with "unspecified autoimmune", would like some input

    Extreme dysphagia, diagnosed with "unspecified autoimmune", would like some input I have done the math, and I'm a statistician - getting diagnosed with ALS is extremely rare. For someone like me, younger than 30 (I am 29), it's even more rare. On top of that, "bulbar onset ALS" is an additional...
    • kpareed44
    • Thread
    • als autoimmune back battery brain bulbar bulbar onset choking diagnosed diagnosis dysphagia food neurologist onset problems steroids stroke swallowing symptoms tests tongue twitch unknown video
    • Replies: 17
    • Forum: Could this be ALS?
  2. S

    First I don't think I have ALS--just need opinions and resources

    I'm 32/female. This all started when I was 15 and has slowly, very, very slowly eaten away at my body. I do not think I have ALS. This is way too slow. My problem areas are all on left side of my body, except for my toes. I haven't been able to wiggle or bend my toes on either foot for about 10...
    • StrengthinLimbo
    • Thread
    • ability als ankle arm back bed disability dying emg falling family family history female medical marijuana muscle neurologist pain paralysis problem stress stupid tests unknown vision wanted weakness wrong
    • Replies: 3
    • Forum: Could this be ALS?
  3. S

    Is this BFS or ALS?

    I'm sure a lot of people post here about muscle twitching and I apologize for being one of those people, I have been scouring the internet for answers and I'm deciding to post to see if there's anyone out there who may have some good insight. Thank you in advance. My mother passed from ALS...
    • surftwist
    • Thread
    • als als? bfs bfs or als? family family history family member fasciculations fear female fingers hyperreflexia muscle muscle twitching night paralysis scared symptoms tiredness twitching unknown weakness young
    • Replies: 2
    • Forum: Could this be ALS?
  4. W

    Confused Abt Limb EMG and Bulbar

    Background: Swallowing difficulties since 7/16. Progressively worse to where I'm now liquid diet only. Weight loss stabilized around 60 pounds (dx esophageal motility disorder unknown origin by Mayo GI). Symptoms progressed to jaw, neck, lips, face & tongue: cramping, pain, weakness, weird...
    • Wmjsmith
    • Thread
    • abdomen arm atrophy breathing bulbar clinical cold confused cramping diet emg eyes fibromyalgia food foot ice muscles normal emg pain questions swallowing test testing tongue twitching unknown weakness weight loss
    • Replies: 4
    • Forum: Could this be ALS?
  5. P

    Newley diagnosed at 26 years old and have just found out I'm pregnant.

    Hi everyone, This is my first time posting and am looking for any advice relating to pregnancy with a ALS diagnosis. I started getting my symptoms 2 years ago when I was 24. It started in my left hand and eventually the constant twitching started in my arm. I have had numerous MRI's, blood...
    • Pdotmummy
    • Thread
    • advice als arm breathing children confused denial diagnosed diagnosis early emg guilt heart life mri neurologist pressure progression story stress symptoms twitching unknown work
    • Replies: 2
    • Forum: Newly diagnosed
  6. S

    The nightmare is not over!

    Some of you remember me and some of you might not and that's okay. It's been a while! Anyway, in 2014 I got the all clear "NO ALS" from Dr. Harati (Baylor Medical School). BUT there was Chronic denervation to upper and lower limbs. Fastward to May 5, 2017 & I'm back to square one. I saw a...
    • Snmartinez87
    • Thread
    • advice als back chronic denervation denervation diagnosed diagnosis emg exercise fasciculations knee pain medical neurologist pain unknown wanted
    • Replies: 22
    • Forum: Could this be ALS?
  7. S

    fevers of unknown origin

    My PALS had a fever last night that made him pretty uncomfortable. It responded to ibuprofen and this morning he's feeling much better. This has happened a couple of times before but last night was more unsettling - he was frightened and felt he was dying (his description). I know fevers can...
  8. W

    Bulbar?

    I've read the primer thread and am not sure what to do with my symptoms: Symptoms began with swallowing problems last July. I'm 43 y.o. and have been an active athlete my whole life. Initially diagnosed esophageal motility disorder of unknown origin. Barium swallow was normal, manometry showed...
    • Wmjsmith
    • Thread
    • achalasia als atrophy back bulbar bulbar onset burning clinical diagnosis diet emg fatigue fibromyalgia life lift muscle onset pain speech swallowing swallowing issues symptoms testing tongue twitching unknown weakness
    • Replies: 3
    • Forum: Could this be ALS?
  9. DaChief

    VA Vehicle Allowance

    Anyone been through this process recently? I have a few questions if so. I have received the paperwork needed from the VA for approval. 1.Is there an expiration on this? The reason I asked is that I do not have a wheelchair yet so height requirements are unknown. 2. I think that I need...
  10. W

    Rapid onset??

    I am not diagnosed ALS. In July I began having swallowing problems. Diagnosed esophageal motility disorder or unknown origin. I've lost 60 pounds to date. Very poor nutrition as I have a hard time getting anything down including liquids. Blood test achr for myasthenia Gravas was 0.0. 3 weeks ago...
    • Wmjsmith
    • Thread
    • abdomen als back breathing clinic clinical dentist diagnosed muscles nutrition onset pain problems swallowing symptoms test tongue twitching unknown weakness weight loss work
    • Replies: 4
    • Forum: Could this be ALS?
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