unknown

  1. M

    Things are getting pretty real...

    Hello! I haven't been on the forums in quite awhile. Tonight I decided to log on and thought I would share some of what I am feeling, since you know all to well what I am going through. Quick background.. my husband (PALS) was dx'ed Sept 2015, he is currently 40 years old. Since then we have...
    • michelleann80
    • Thread
    • bed breathing clinic cry free hours hoyer hoyer lift life lift manual reading scared shower transfer unknown wheelchair work
    • Replies: 18
    • Forum: Current caregivers
  2. BlsdMama

    Does it sound like ALS?

    Have had a spastic/rigid muscle above the knee for a while now. But now I'm having a problem with foot drop/drag - about two months. Have tripped and actually fallen twice, but most of the time it just causes me to stumble. Went to family doctor - no noted issues, referred to neuro. Took a...
    • BlsdMama
    • Thread
    • age als als? back balance brain clean emg clonus communication early emg family female foot foot drop hyperreflexia medical mri muscle night pain problem questions second opinion unknown weakness young
    • Replies: 2
    • Forum: Could this be ALS?
  3. C

    24 and Terrified

    I've flirted with the idea of making an account for weeks now, I’ve been unwilling to feed into my own mounting paranoia, and until now I’ve been avoiding looking into the symptoms at all, but I’ve also found myself in need of community and the presence of those who can help me understand what...
    • chaoticbynature
    • Thread
    • ability autoimmune back decline diagnosis exhaustion falling family family history fingers insurance lead mobility motor neuron disease mri music neurologist pain problem shoulder stroke symptoms tests thumb unknown walker weakness wheelchair worry
    • Replies: 18
    • Forum: Could this be ALS?
  4. B

    Medical expert witness on ALS?

    Does anyone here know of an ALS specialist neurologist who works as an expert witness? It did not matter where they are. I'm also interested in learning of any lawsuits that claim certain events or exposures caused/triggered ALS. Even if they were not successful, I would like to know if any such...
  5. S

    Wheelchair Evaluation

    We have my husband's wheelchair evaluation coming up. Like everything else we've needed to do, we are entering unknown territory. For those of you who have done this already, is there any advice you can give us?
  6. S

    Newbie here

    Hi! I'm Sophie and I have fibromyalgia and benign fasciculation syndrome. I also have finger muscle weakness due to an unknown cause, (emg next week.) I also have generalizrd anxiety disorder which disturbs my life quite a lot. I thought that since I have given many tips how to reduce anxiety, I...
    • Sohvi
    • Thread
    • anxiety emg fasciculation fibromyalgia finger life muscle muscle weakness newbie unknown weakness
    • Replies: 5
    • Forum: New members
  7. M

    Very concerning symptoms

    Thank you all for reading my post. I will make it as short as possible. I appreciate any replies or thoughts that you can offer. I am a 46 year old female. My symptoms started in August during a time of high stress and also the rabies vaccine series. My GP and the CBC states the vaccines should...
    • Momto2
    • Thread
    • abdomen allergies anxiety atrophy bulbar bulbar als cramping fasciculations female fingers immediately immune muscles night nose pain phlegm ring finger scared spasms stages stress swallowing symptom symptoms test tongue twitching unknown worried
    • Replies: 19
    • Forum: Could this be ALS?
  8. NotALS!

    Misdiagnosed 4 times

    Hi. I want to share my ALS journey with others to let them know that it is possible to be misdiagnosed with ALS. Since my story spans 8 years, I will try to give a brief synopsis of what cured (yes, I said CURED) me. It started in 2009 when I lost strength in my left hand. It quickly spread to...
    • NotALS!
    • Thread
    • ability als autoimmune back biopsy brain breathing cpap cured diagnosis hope insurance lyme mistake money neck brace neurologist night progression shoulder sleep story support symptom test tests unknown weakness
    • Replies: 13
    • Forum: Stories of hope
  9. H

    Dealing with anticipatory grief...

    First time in a forum! I'm not sure how to start this but... I am the caregiver to my wife and we were diagnosed on June 6th, a month ago. BTW I have been using the royal "WE" when it comes to my wife's health for a while now. Margarite (not her real name) was diagnosed with Crohn's disease in...
    • Hubby caregiver
    • Thread
    • als caregiver chair diagnosed family fear grief health insurance manual planning rant support treatment trip unknown walker website
    • Replies: 61
    • Forum: Current caregivers
  10. Z

    Seeking insight, 21 yo with als symptoms.

    Let me preface this by saying how appreciative of any responses I might get. To those on this site affected by als, you are in my prayers every night. You're determination and unwillingness to quit is an inspiration. We lost a good family friend to als and I have a rudementary understanding of...
    • Zdubs
    • Thread
    • als als symptoms anxiety clinical death emg eye family fatigue foot friend lift medical mri muscle muscle fatigue night pain shoulder symptoms tests tremor twitching unknown weakness wrong
    • Replies: 3
    • Forum: Could this be ALS?
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