update

  1. S

    Update - 12/24/18 - Extreme bulbar worries

    Hello everyone...I hope everyone is having a good Christmas season. I wish I could say the same. It's been almost 6 months since I have been here. Some things have gotten better and some a lot worse/terrifying. I was hoping to never have to come back here but my situation has dictated I do...
    • spacecowboy000
    • Thread
    • als back bulbar bulbar onset burning choking christmas clinical early eyes family food hope neurologist onset pain pressure scared speech swallowing symptoms tongue twitches update urgent weakness
    • Replies: 3
    • Forum: Could this be ALS?
  2. N

    Moving forward

    I guess I need to start a new thread. My “Struggling” thread felt like home. However, it’s no longer in the proper category. As of today, things are going well. I got caught up on work stuff as that just keeps mutlipying with out regard to anything or anyone. That was a hugs monkey off of...
  3. M

    Follow up neurologist appointment today

    Hello. I wanted to share my update following appointment this morning at Hershey Medical Cenyer in PA. Dr. Did a full neuro test and found slightly brisk reflexes on left side. She seemed concerned with my jaw jerk reflex. She had a another neuro come in and do some reflex test and the jaw...
    • Malthoff8
    • Thread
    • advice als clinical emg medical neurologist speech test update wanted weakness
    • Replies: 15
    • Forum: Could this be ALS?
  4. W

    EMG update

    So I had my EMG last month on my whole left side including tongue and back came back clean but I'm having symptoms on my right like my hand and forearm twitching my hand feels stiff and difficult to use just scared maybe the should've done my right side freaking out feels like it's getting worse...
  5. L

    Get a good neurologist !!

    I know my previous thread was closed. I only sent this to say I have to start all over because the neurologist I seen completely lied on my evaluation. So much that when my PCP seen me, He couldn't recognize that this neurologist didn't see all the atrophy, difficulties breathing and swallowing...
    • LUTHER
    • Thread
    • advice als atrophy breathing clinical life neurologist swallowing symptoms symptoms of als update
    • Replies: 1
    • Forum: Could this be ALS?
  6. W

    Gen-fi

    Just a quick update. My husband joined the Gen-fi study and has been for his first round of tests . He also had an EMG as he has C9orf72 .This showed mild changes to the left lunar sensory nerve and some change with his left ankle. They said it's not concerning. Does this mean we can relax and...
  7. K

    Neuromuscular referral

    This is just an update.. My GP is sending me to a neuromuscular specialist in Omaha. He is concerned about all my symptoms and simply stated “I’ve tested most things I can test, and it’s simply out of my knowledge range.”. I’m grateful for him, I had a pulmonary test that came back fine so...
  8. A

    Update after Neuro visit

    Just wanted to check in. I had my follow up appointment with my neuromuscular specialist at OSU on Wednesday of last week. It was a completely different experience than I had the last time. I didn’t see the medical student, only my doctor, which I think made a huge difference. He actually...
    • Andrea1653
    • Thread
    • ankle atrophy back clinical emg foot hyperreflexia medical sleep student update wanted weakness
    • Replies: 10
    • Forum: Could this be ALS?
  9. L

    Didn't think I would be back

    My first neurologist diagnosed me with HIV Associated Vacuolar Myelopathy and didn't think I had ALS (less than a year ago). The second neurologist concurred and all the extensive testing was normal. My I.D. doctor thought I had ALS and just recently I went to a neurosurgeon to find out what...
    • LabradorsRule
    • Thread
    • als atrophy back brain cold diagnosed diagnosis hiv mri muscle neurologist pain reading symptoms testing tests update v.a. veteran weakness website wheelchair work
    • Replies: 3
    • Forum: Could this be ALS?
  10. C

    Another neuro update

    Hi all, Just wanted to post a new update. I meet my neuro the other day and he did all the tests: reflexes, walking on heels and toes, look into my eyes with flashlight, holding my arms in front of body. Did no strenght tests at all and that is concerning since on of the symptom is my shoulder...
    • concernedman
    • Thread
    • als atrophy eyes shoulder symptom symptoms tests therapy update wanted worried
    • Replies: 4
    • Forum: Could this be ALS?
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