update

  1. E

    BACK WITH UPDATE - 4 months in

    Hello everybody. Thank you in advance to everybody acknowledging my post. I will keep this as short as possible as I’m aware many of you are busy dealing with other people’s queries. I’m back after posting a few months back. Below is a summary of my symptoms. I’m happy to report I took all of...
  2. worrieddaughter77

    Have you heard about this research and info on trials?

    I know there are many of you on this forum who are quite knowledgeable about the current research on ALS. Is this something you have already discussed? How promising is it, and has any of you enrolled in the trials...
  3. J

    Update, and question

    Hi I was on here at the start of the year to follow up with the results of my EMG in January - this was done at8 or 9 points on the right side, and was what I believe is considered "clean" - it showed fascs at 3 points but nothing else. That was after circa 2.5 years of twitching and lots of...
  4. S

    19 y/o male - are these symptoms consistent with bulabr ALS?

    I'm a 19 year old male worried about bulbar ALS, to the point where I can't enjoy my life anymore. I've been to my primary doctor about it but not a neurologist yet. He didn't seem to be worried about it. I've had an MRI and that was normal. I've been having sleep apnea for almost a year and...
  5. W

    Wyoste update neurologist visit

    Saw neurologist today. A couple of days earlier because she had a cancellation. She recommended I go to Brigham and Women's in Boston to a muscle specialist. She said he was best in world lol. I suggested she do another EMG before I go to Boston. She agreed to that idea. I'll have to wait until...
  6. S

    Update - 7.5.18

    This is my original thread - Do I Have ALS? Is This ALS? - ALS/MND Support Group Forums /41308-possible-tongue-atrophy.html I have gone to my rheumatologist and he found nothing... Which I wasn't expecting but thanked God it was. However, my speech seems to be getting worse. I stumble over...
  7. R

    Update re: Previous Thread

    https://www.alsforums.com/forum/do-i-have-als-als/41324-just-need-relief.html The above thread is my original thread, which has since been closed. Hi, I posted about two months ago with concerns that I had re: twitching and other ailments that were not indicative of anything worrisome. I saw...
  8. L

    Update to previous thread

    Hello again, my previous thread is now closed but i wanted to make an update as to my current situation. Since my last post I have had an ultra sound of my shoulder which showed inflammation and fluid and was diagnosed with tendinitis and bursitis; I am currently awaiting physiotherapy. My...
  9. E

    Needing some guidance!

    Hello All. I’ve thought long and hard before posting this as I’m very much aware of the daily struggles a lot of you here face. I am however finding myself on this site more and more frequently and feel untill I have my questions answered from people with real life experiences - only then will I...
  10. A

    Update and advice needed

    I had hoped that I would be able to report back with some kind of diagnosis, but unfortunately I still do not have one. Timeline since my last post: -went to a podiatrist. Has a foot MRI which showed all sorts of things such as tendinopathy, mucoid degeneration, joint effusions, tenosynovitis...
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