venting

  1. S

    Definitely starting to feel him slipping away!

    Dad has been strong through all of this and at times stubborn but then again I have his genes so I have been just as stuborn at times sometimes to the benefit of us both he finally went along and sometimes we locked horns but we have gotten through it but this time I am not for things are...
    • Snowman78
    • Thread
    • advice bed breathing dad eyes food hope morphine nurses questions swallowing swallowing issues venting
    • Replies: 8
    • Forum: Current caregivers
  2. D

    Need to wihine and be thankful at the same time

    My PALS, DX'd a year ago is now unable to use hands, or arms and is in a powerchair nearly full-time. So I do his meds, shower, dress, toilet (thank you bidet!) and feed him. His sister, a most loving generous woman is staying nearby in her RV to provide help but I still have difficulty with...
    • DreamsEnd
    • Thread
    • brother china christmas early frustrated love meds problem respite shower support venting wheelchairs whine
    • Replies: 7
    • Forum: Current caregivers
  3. J

    I thought there was no pain

    I awoke from a nap today and both of my calves were in knots, cramping badly, can hardly walk, I have has faculations since diagnoses. Massage helped some. My feet hurt as if I have walked a long way. I have had plenty of liquids. Sorry, just venting. Janie
  4. P

    New to group

    Good afternoon I am new to this forum. I had 2 Aunt pass away due to ALS. One bulbar one limb. They passed 3years apart. NOW my mom is currently going through the testing waiting for diagnosis. On Sept 24th she will see the neuro for the results. We are going through the motions but we...
    • pastor
    • Thread
    • als angry bulbar bulbar onset caregiver diagnosis heart life onset swallowing testing venting voice
    • Replies: 18
    • Forum: Familial ALS (FALS)
  5. J

    I can't breath

    Having a terrible time breathing. Yesterday I thought it might be my last. My CALS called the clinic director (I go tomorrow) and asked if there is anything that will force meds into my lungs. She was rude and said that there is no magical med that she knows of, there are so many good people at...
  6. A

    New to forum, venting, & questions...

    Hi, I am new to this forum. My mom (62 years old) was diagnosed in November 2013 with ALS. She moved in with me so I can care for her. She has progressed extremely fast. She has no use of her legs or arms. Her right hand she can use her finger a little, but it is extremely difficult. Her...
    • amandaw120
    • Thread
    • als breathing chair clothes diagnosed finger help! hoyer hoyer lift lift problem questions shower sling support test venting voice
    • Replies: 9
    • Forum: Current caregivers
  7. J

    Change in symptoms

    Hi guys. I posted here last year since at the end of March of last year I started having widespread fasciculations. They were strongest/most constant in my calves but were also occurring in other parts of my body. I went to a neurologist, who detected the fascics but couldn't figure out what...
    • JEB1979
    • Thread
    • abdomen diagnosed emg family family member fasciculations neurologist second opinion shower stress symptom symptoms venting worried
    • Replies: 3
    • Forum: Could this be ALS?
  8. C

    Venting

    My husband has been diagnosed with ALS in December. Most of the time he is pretty good, but some times he get mad with frustration and yells. I understand but sometimes it hard to be everything. A wife, chef, cleaner, dentist , mom and still have time for me. He doesn't understand that I...
  9. M

    Dad's speech getting worse

    Hi All! I have not been on too much in the last few months. My dad was diagnosed end of October 2013 and seems to be hanging in there. He has Bulbar so his speech has gotten harder to understand and I can tell he tries hard to say his words. His left hand looks like it a claw, but he seems...
    • mariam
    • Thread
    • brain bulbar claw dad diagnosed family frustrated health life pain problems sad speech stress vent venting worried wrong
    • Replies: 16
    • Forum: General discussion about ALS/MND
  10. H

    help with mundane stuff?

    Greetings, PALS. I'm new at this ALS stuff, and I feel like I'm reinventing the wheel. Herewith some of my (dumb?) questions: What are the most comfortable kinds of clothes to wear while sitting in a wheelchair most of the day? Not the jeans I used to live in, I know. And my shirts and...
    • hmm223
    • Thread
    • back clothes hoyer hoyer lift lift questions ramp shower shower chair sling venting wheelchair
    • Replies: 8
    • Forum: People with ALS (PALS)
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