venting

  1. Pkmado

    Just a few stumbling blocks.

    First of all I love my Pals. He is a wonderful caring person. Sometimes things just get messed up. We are pretty much able to keep things on an even keel. As ALS progresses new deficiencies occur. I shower, dress and tend to all hygiene for my Pals. Shaving is a *****. We have tried an...
    • Pkmado
    • Thread
    • ability ache age angry back cals eating lift love night nutrition peg power shower swallowing venting work worry wrong
    • Replies: 30
    • Forum: Current caregivers
  2. A

    Venting like always

    Reflecting on today. I care for my mother Monday through Friday usually 9 a.m.-7 or later to help with dinner. My father has a pretty physically demanding job, but takes care of her nights, mornings before work and weekends. I recently put in my two weeks notice and my weekend retail job so I...
    • AngelaRenee
    • Thread
    • back caregiver dad father feeding feeding tube hope hoyer hoyer lift ice life lift venting work
    • Replies: 8
    • Forum: Current caregivers
  3. F

    Non Terminal with a Vent

    Pals need to wake up an realize that with appropriate care one can live decades on a vent. ALS is not more terminal that a high SCI, and less terminal than terminal cancer. I am tired of these BS neuros and their medical discrimination. We are organizing demonstrations on 1/6/2014 and anyone who...
  4. Rainbow5

    Testing underway; kinda angry; purposeful resilience

    Hi all, Thank you for reading this - it means a great deal to know that folks are out there willing to provide support. This is not my first time in life with health issues. I have successfully experienced, with purposeful resiliance -epilepsy (since 12, well controlled) a fall down the...
    • Rainbow5
    • Thread
    • angry back balance brain brother children diagnosed emg falling family health ice kids leg pain life mad mri neurologist pain pneumonia problems reading scared support symptoms testing tests venting whine work worried
    • Replies: 6
    • Forum: General discussion about ALS/MND
  5. V

    see what happens tomorrow

    I have an appt with a neuro nurse tomorrow morning. Hopefully some light will be shed on whether that earlier appt with the neurologist was a diagnosis or what? The past few weeks i've been feeling quite weak, arms are feeling really heavy and dreading that this is the start of further...
  6. Barbie

    So Cheesed Off!

    I am so Cheesed at my "kids"! I have 3 living at home, in their late teens/early twenties. free room and board and lots of perks and few chores. They help with dad, but really not very much in the big picture. So I decided that I was going to do Yoga one nite a week (1.5 hours only) but I...
  7. Pkmado

    Forum activity

    Sometimes I write posts on notepad and then don't post them. Like everything with ALS if you wait just a bit it no longer applies. Sometimes you just feel like your whining even though you know your just venting. Pointing out the lack of communication has promoted me to share one of those notes...
    • Pkmado
    • Thread
    • als arm breathing chair communication coughing depressed friend heart hospice night venting wrong
    • Replies: 6
    • Forum: Current caregivers
  8. L

    Mind Fog

    Hi once again. Two weeks ago I had another EMG, and was given the dreaded diagnosis of "most likely ALS". Before that, I was reassured that this was PLS, so a somewhat better prognosis. I immediately went into a kind of "brain fog" of fear and depression. I'm continuing on with that, while...
    • LinCan
    • Thread
    • age als balance brain bulbar depression diagnosis emg fear friend health hours immediately nursing home onset pls symptoms venting
    • Replies: 10
    • Forum: Newly diagnosed
  9. J

    Fasciculations driving me crazy!

    I walked on the treadmill as I was told, 5 minutes on, 5 off for 30 minutes total walking, my legs have not stopped since, maybe I over did it, my body is still getting used to rilutek and the many vitamins that I started 2 weeks ago, just venting.
  10. C

    Very Frustrated Please Give Insight

    Hi everybody, I posted a few months back and I am just severely frustrated. Long story short, I have been to Beth Israel, John Hopkins, and at the advice of forum members Mass General. I have a severe problem because my chest has collapsed and back is very weak which all started with severe...
    • CRR10
    • Thread
    • advice als back bipap breathing clean emg clinic death diagnosed early emg financial frustrated fvc hearing insurance medical mnd mnd/als problem stiffness story unknown venting weakness worry
    • Replies: 3
    • Forum: People with ALS (PALS)
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