worldwide

  1. R

    NP001 again

    Clinigen partners with US firm to provide access to new ALS drug in Europe - Proactiveinvestors (UK) Clinigen Group’s (LON:CLIN) Idis business has teamed up with Neuraltus Pharmaceuticals to provide access in Europe to a drug the latter is developing for amyotrophic lateral sclerosis. Also...
  2. B

    Mucus Treatment

    Found this on ALS Worldwide. Has anyone tried it? It appears to be an effervescent like Alka Selzer. Cost through iHerb is $29.99. Effervescent Acetylcysteine | ALS Worldwide Vince
  3. R

    ALS Advocacy Events - May, 2015

    This week there are several advocacy events ... a.) ALSA Advocacy Conference -- Here's the attendee packet. b.) Hope Now for ALS Rally -- Here are details. I hope that people attending a.) will stop by for b.) (Which is about much, much more than GM604. It's about faster paths to get...
  4. M

    $1800.00 Dynavox Max+ w/EyeMax

    Interest: I had a loved one pass away from ALS/MND. Posts: 0 Dynavox Max+ with EyeMax must sell ASAP! Price drop $1800.00 NEED TO SELL ASAP Unfortunately loss my dad to ALS, and then my mother only six weeks later from a heart attack. This equipment is in new condition, it was only used...
  5. M

    Dynavox Max+ with EyeMax must sell ASAP!

    NEED TO SELL ASAP Unfortunately loss my dad to ALS, and then my mother only six weeks later from a heart attack. This equipment is in new condition, it was only used twice in two training sessions due to my fathers very aggressive ALS. Needless to say I'm very emotionally and mentally...
  6. L

    Selling VMAX+ (w/ Eyemax) for low-price.

    Hi everybody! Sadly my grandma had been battling ALS for years then passed due to old age and now I have a VMAX+ to give to a person in need. We paid something like $8500 for it (which is expensive beyond belief) but I will sell it for much less to anybody that really needs it. I'm asking...
  7. Nikki J

    From Mass General

    This is part of a fundraising letter from my neurologist ( this is the first time I have received one and I donated to them on more than one occasion so I did not mind at all getting it) I think I removed all fundraising parts but thought the rest might be of interest We, at the Massachusetts...
  8. E

    Canadian Newby with PLS

    Hi everyone, I've been reading some of the posts here and can relate to the frustrations with this disease. On one hand we are lucky we don't have ALS but we have a longer life to live with poor quality and lack of independence. On top of that we are at the bottom for any clinical trials. I read...
  9. G

    Rename website?!?

    With the attention worldwide should the website be changed from ALS to "that disease with the ice bucket challenge" ?
  10. R

    ALS and protein supplements

    I used a gold standard whey protein supplement for 4 months and started suffering with lower back pain and body cramps so I stopped taking it these cramps are still present and I now have trouble walking due to the stiffness in my hips lower back knees ankles I have seen numerous doctors had emg...
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