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  1. J

    cheap alternative car conversion ?

    MODERATOR...I know you dont like to advertise, but thought this may be a useful link We are currently looking for some kind of new vehicle or adaption for getting in and out of the car and came across this. thought it might be of interest to others. http://www.elap.co.uk/ProdRotatingSeat.html...
  2. K

    ALS Documentary- Indestructible

    For those needing strength or guidance Indestructible a great new documentary has been taken up for worldwide distribution Indestructible is a 2008 American documentary about American playwright and actor Ben Byer's battle with ALS, a fatal neurodegenerative disease (Amyotrophic lateral...
  3. David

    A Blockbuster Approach to Funding ALS Research

    Source: ALS Society of Canada Date: April 1st, 2009 Title: A Blockbuster Approach to Funding ALS Research Two seemingly disparate strands – a runaway blockbuster and a clinical trial of a promising new therapeutic approach to a fatal neuromuscular disease – are being woven together...
    • David
    • Thread
    • als als research bipolar book cals canadians clinical clinical trial cure data death diagnosis early family health hope information life lithium love medical muscles night professor progression research riluzole stages story support treatments trial women work worldwide
    • Replies: 3
    • Forum: General discussion about ALS/MND
  4. rocmg

    IPLEX for the rest of the world?

    This in earlier today... is it cause for excitement? trying to keep everything in check here... *** INSMED WILL CONTINUE TO MANAGE ALS EAP IN ITALY AND ALL IPLEX(TM) INITIATIVES IN THE U.S. IDIS WILL HAVE RESPONSIBILITY FOR REST OF WORLD RICHMOND, Va., March 30 /PRNewswire-FirstCall/ --...
    • rocmg
    • Thread
    • age als candida children clinical clinical study design fda financial medical treatment worldwide
    • Replies: 13
    • Forum: Research and trials
  5. C

    ALS Research 101 - Coming to 12 Cities in 2009

    This is from the ALSTDI site...posted today. Seminar Will Bring ALS Researchers to Patient Groups The Leading ALS Lab Presents on Therapy Development Strategy The ALS Therapy Development Institute (ALS TDI) has announced the 2009 launch of its popular ALS Research 101 series. The two-hour...
    • constructionduck
    • Thread
    • als als awareness als research awareness boston diagnosed early free information life planning progression quality of life research symptoms therapy treatments update worldwide
    • Replies: 0
    • Forum: Off topic everything
  6. David

    “Head and Shoulders Knees and Toes” Canadian PSA

    ALS - Head and Shoulders - YouTube The ALS Society of Canada has launched a new public service advertising campaign created by Lowe Roche, Toronto to raise awareness about Amyotrophic Lateral Sclerosis (ALS) and the ALS Society's efforts to fund research towards a cure for the disease...
    • David
    • Thread
    • age als awareness brain breathing canada cure diagnosed digital eating financial health information muscles research sad treatment wanted worldwide
    • Replies: 38
    • Forum: General discussion about ALS/MND
  7. A

    March in DC for Iplex 11/11/08

    Well, Team Iplex has finally done it. We have written to Insmed, Genentech and Tercica, the media outlets, etc. What we have gotten is a public policy statement by Insmed apologizing that they can only give Iplex to Italian ALS patients. Genentech and Tercica have maintained silence. Now we are...
  8. ZenArcher

    Whiskey Tango Foxtrot

    I have to ask forgiveness up front because this post may become somewhat vocal. I read an article today online that well frankly pissed me off. I've since tried to move one but the more I think about it the angrier I get. The article I'm referring to was in the Washington Post and is titled...
    • ZenArcher
    • Thread
    • advocate als als registry cals eyes family family member friend grant increase information military money senate taste veterans worldwide
    • Replies: 14
    • Forum: General discussion about ALS/MND
  9. A

    Link to ALS/Iplex activism forum

    At this risk of being booted, I am posting this here for you guys to see. You may have noted, I have been spotty in my attendance on this forum. As Jim's progression has gone on, I have become more interested in the role of advocacy, and preserving his function by whatever means possible. As...
    • andyvaughn
    • Thread
    • activism advocacy als cals cure hope information introduction life medicine petition problem progression research risk therapy treatment wanted work worldwide
    • Replies: 3
    • Forum: Research and trials
  10. H

    SOD1 mice used in Alzheimer research

    I read in an ALSA article that SOD1 mutations are being used in mice studies to help researchers looking to cure Alzheimers and Parkinsons Disease. The researchers are using the SOD1 because they can see the effects on the mice easily compared to not being able to see the effects on Alzheimers...
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