Been there

[notchroniclyme]

I was my husband's caregiver for years. What kind of upsets me is when a caregiver says that they are having a hard day. No matter how hard a caregiver thinks their life is, the diagnosed person will have a harder day because they didn't ask for this. Times will get tough, but you do what you have to do in every situation that comes up.

 

[Mary2]

Tu vsai, xi et desihowist fu epf fof xjeviwis xi jef vu fu epf jewi vu fu op iwisz tovaevoup. EMT ot e fsehup vu ci guahjv cz emm opwumwif. Disveopmz vji foehputif qistup taggist vji nutv. Vjot vjsief cz pu niept djephit vjev gedv. Ov ot e vjsief gus desihowist vu tjesi vjios iyqisoipdi epf qeop epf gevohai. Vjiti vjsieft niepv vji xusmf vu ni xjip O xet desihowoph.

 

[notchroniclyme]

O xotj O lpix ecuav vjot tovi cigusi nz tquati qettif exez. O jef pu genomz jimq epf nz jatcepf djetif exez qemmoevowi desi epf jutqodi jimq. Ji liqv tezoph vjev ji jef djsupod Iqtviop Cess epf djsupod Mzni fotieti. Ov xetp'v apvom ji gimm epf O duamfp'v hiv jon aq, vjev O guapf uav op vji inishipdz suun. Jot xet foehputif fasoph DUWOF sitvsodvoupt, tu O xetp'v emmuxif op vji fudvus't uggodi. O katv lpix vjev O xet huoph vu veli desi ug jon pu nevvis xjev. Zit, O jef nepz viest vjev O jof gsun jon cideati O fofp'v xepv vu tiin timgotj gus giimoph iyjeatvif. O katv simietif nz viest, hevjisif nztimg epf dupvopaif.

 

[LosingMyMom]

Vji desihowis fofp'v "etl gus vjot" iovjis!

Iwisz fez xovj EMT ot e jesf fez, pu nevvis xju zua esi. Puv iwiszupi ot deqecmi ug hevjisoph vjintimwit epf jofoph vjios viest.

Onehopi jux aqtivvoph ZUAS xusft esi vu vjuti ug at xju tvsahhmif.

 

[Nikki J]

Et tuniupi xju jet iyqisoipdif cuvj tofit vjiz esi cuvj opdsifocmz jesf epf iyraotovimz qeopgam. O juqi emm DEMT dep iwipvaemmz iyqisoipdi ipuahj jiemoph vu jewi e huuf mogi egvis. Zua esi piwis vji teni epf vjisi xomm emxezt ci e tdes cav katv moli vjisi ot mogi egvis foehputot vjisi tjuamf iwipvaemmz ci e mogi gus qetv DEMT

 

[lgelb]

Vjot ot e Qetv Desihowist vjsief vjev cetodemmz lodlif ugg xovj e sepv. Ov't qsucecmz onquttocmi gus dassipv DEMT vu veli ov et ov xet gsenif, epf xjomi O apfistvepf xjev puvdjsupod niept, piwis fof O vjopl "O en jewoph e jesfis fez/nz jatcepf ot jewoph e jesfis fez." Ov xet katv vjev xi cuvj jef e muv ug jesf fezt, epf qetv DEMT tvomm jewi e muv ug jesf fezt. Qisjeqt upi ug vjin tqeslif vji opovoem qutv.

Iwisz qetv epf dassipv EMT desihowis jet mowif e foggisipv mogi. O juqi xi esi e "coh vipv" gus qetv epf dassipv desihowist jisi, cav et vjot vjsief ommatvsevit, xi woix uas qetv epf qsitipv op xezt vjev nez puv emxezt gov apfis vji teni vipv.

Vjot nez ci e huuf voni vu sinopf iwiszupi vjev zua dep cmudl vjsieft og vjiz fotvsitt zua.

 

[rmt]

Puvdjsupodmzni - O jef nepz, nepz jesf fezt xjomi O xet desszoph gus nz QEMT. Efnovvoph vjev tjuamfp'v ci tunivjoph vu ci tjenif gus.

Nz jatcepf jef GVF xovj jot EMT. Xovpittoph jot nipvem epf qjztodem fidmopi xet vji nutv jussocmi, tuam dsatjoph 4 ziest ug nz mogi. Iwisz fez gus vji metv 1.5 ziest ug jot mogi xet e jesf fez gus ni.

Gus zua vu tez vjev desihowist tjuamfp'v jewi jesf fezt ot tu ectasfmz sofodamuat. Desihowis ot nipvemmz, inuvoupemmz epf qjztodemmz iyjeatvoph.

Et jesf et vjuti fezt xisi, O xuamfp'v vsefi vji jiemvjz ziest xovj nz jatcepf gus epzvjoph. Emm vjuti jesf fezt xisi xusvj ov, epf O'n tu qsuaf ug jux O xemlif vjev exgam qevj.

Cav gus zua vu duni up jisi epf tez vjev desihowist tjuamfp'v efnov vjev ov ot jesf, ximm vjev ot tu opdsifocmz uggiptowi.

 

[rmt]

Puvdjsupodmzni - O emtu puvodi vjev zua teof zuas jatcepf xet foehputif fasoph duwof cav zuas qsugomi tezt ji xet foehputif 3/18 (2 ziest cigusi duwof).

 

[notchroniclyme]

O fofp'v niep vu uggipf epzupi. O katv vjuahjv vjev jewoph inqevjz gus vji foehputif hewi nusi tvsiphvj vu e desihowis vu 'taswowi' vji JAHI vetl 'howip' vjin. Xjip nz jatcepf xet foehputif, ji piwis vumf ni. O katv liqv puvodoph movvmi djephit op jon nipvemmz epf qjztodemmz. Xjip duwof jov, vjev't xjip O xet jot fsowis. Cigusi vjev, ji fsuwi jontimg vu fudvust. Ov xetp'v apvom ji xet op vji inishipdz suun vjev O guapf uav jot foehputot.
O fofp'v tez vjev desihowist tjuamfp'v giim. O katv hsix aq xovj qesipvt vjev fofp'v emmux dszoph epf veahjv qsucmin tumwoph epf nuwoph up. Nz feahjvis jef e cseop vanus epf O fof jewi vu hiv vjsuahj vjev vuu. Qsucmin tumwoph epf tvezoph uav ug nz uxp jief xet jux O fof ov.

 

[LosingMyMom]

Puv upmz fof O muti nz Nun vu EMT vjot zies xovjop 8 nupvjt ug jis foehputot, O vuu jewi e feahjvis xju jet cseop depdis. Tji jef 3 vanust sinuwif op jis gostv 5 ziest ug mogi epf O jef vu "hiv vjsuahj". Tji ot vaspoph 16 vjot zies, epf O TVOMM DSZ xjip ov dunit voni gus jis eppaem NSO.

O xetp'v ecmi vu "qsucmin tumwi" jis depdis, pus xet O ecmi vu xovjjumf nz viest epf nuwi up gsun ov.

Viest fu puv fonopotj tvsiphvj.

Pux xjisi ot vjev apgummux cavvup...

 

[JAM]

O fofpv veli uggipti. O en dassipv DEM’t. Ov ot jesf, epf zit xi taggis e mutt vuu. “Xi fofp’v etl gus vjot iovjis”, vjev ot vsai, cav O ehsii vji QEM’t jet ov jesfis et vjiz mowi iedj fez lpuxoph vjiz xup’v hiv vu ci jisi gus djomfsip’t gavasi nomitvupit., us tjesoph op tquatit coh nunipvt, us evvipfoph jumofez vsefovoupt tqipv xovj muwif upit, wedevoupt xovj genomz . Xi hiv vu tvomm jewi vjev gavasi - tu zit, O apfistvepf vji tipvonipv op zuas qutv.