My wife's crying and sadness with ALS is getting to me

[LizT]

maybe you guys havent seen it, but the original poster has been banned.

 

[kiwisally]

I saw it the day it was done, and mentally thanked the powers that be, that guy really burned my toast.

 

[LizT]

I think he was well beyond needing help. complete burnout.

 

[LizT]

i think he was well beyond needed help. complete burnout.

 

[kiwisally]

Liz, I sincerely hope that was all it was.

 

[Ms. Pie]

His poor poor wife. I hope she's being taken care of.

 

[LizT]

It can get so bad that ppl start not only neglecting the patient, but abusing them as well. I sure hope he got some help.
That poor wife of his.

 

[kiwisally]

I hope so too, every post sent me into a tail spin with worry yet I was obsessed with reading them and couldn't stop myself. UGH! Even now I just get worked up imagining what is going on or not......

 

[LizT]

this is SOOO off topic, but i just noticed... how come im the only one without a like button?

 

[kiwisally]

You have one, you just can't see it, I can't see mine on my own post but can see (and just hit) yours on your one. Like button paranoia rears it's ugly head, lol.

 

[LizT]

guess we arent aloud to like ourselves. LOL No problem there! DONE!

 

[LizT]

Wow.... i meant allowed. yeah....

 

[Toto's Dorothy]

Well I missed the banishment I worry About his Wife Also I hope And pray There are No guns In the house

 

[lms9258]

..."hope that was all it was"?...Caregiver burnout is a serious psychological condition, and can lead to caregiver breakdown. I realize he posted this on the General Discussion forum...but I sincerely hope that he was not banned because of the difficulties he's having, or being a "bad" cALS. Sometimes it is hard to get desperately needed help while in the throws of intense caregiving AND mental issues resulting from it. Yes...I feel worried about his wife, but now cannot even leave a message for him. I wish there was a way to help them, as some pALS and cALS just don't have "more help" options, or he just can't find the way. He posted that this was such a great place, with such great people...I guess that only applies to members that always have it together and are tough as steel. It has been stated hundreds, if not thousands of times that many of our close family, and social circle do not understand what this is like. This is the only place some people have to get it out...so that they DON'T take it out on their pALS. Liz, I know that you recently urged him to get help because of burnout, and many members gave him practical advice too. I guess this feeling of helplessness is to be expected when distance and anonymity prevent us from being able to do something. However, caregiver stress, burnout, and break-down are unfortunately a reality with this disease. Is there no place on this forum for compassion when it occurs? Is it simply unacceptable and taboo to discuss on here?

 

[brooksea]

lms9258, I appreciate your post. But, the original poster was banned due to inflammatory remarks. I would venture to guess he would attack you, also, as your pALS has passed. Apparently he felt people in that category should not be on these forums. People truly tried to help him and showed great patience and compassion, those same people were virtually spit upon by this poster. The remarks have since been deleted, so you missed the drama.