advice

  1. M

    25 year old. Possible ALS?

    Hi everyone; let me introduce myself. My name is Yasmin and I am a 25 year old female. I hate that I’ve come here and I wish I didn’t get to this point because I feel absolutely awful for doing so but the anxiety ended me up in the hospital and I am at my lowest point with this fear or...
    • MinFoy
    • Thread
    • abdominal advice als als? anxiety atrophy back balance bfs diagnosed diagnosis emg fear female mri muscle neurologist possible als sensitivity stroke tests tremor twitches weakness worried young
    • Replies: 6
    • Forum: Could this be ALS?
  2. W

    Questions on testing

    Thank you for taking the time to read what I have going on. I am a 44 years old mom of two adult children and a 10 year old. Last month, my boss called an ambulance and had me taken to the hospital because I was having problems talking, couldn’t swallow and couldn’t lift my leg and I panicked...
    • Walstorj
    • Thread
    • advice arm back children diagnosed diagnosis emg food heart lift mri myasthenia gravis neurologist questions stroke swallow symptoms test testing tests tongue twitching ultrasound wanted weakness
    • Replies: 2
    • Forum: Could this be ALS?
  3. J

    My symptoms, my fears

    Hello, first of all thank you for letting me join this forum. I’ve been dealing with some symptoms in the last month and I wanted to ask your opinnion about it. I’m 40. For some time I had some numbness in my hands, legs and upper lip so I had an appointment with neuro to see if something...
    • JTTP
    • Thread
    • advice anxiety cramps emg fear finger fingers hours ice mri night pain stiffness symptoms test tests twitching wanted worried worried about als worry
    • Replies: 10
    • Forum: Could this be ALS?
  4. T

    Familial ALS continued

    Hello- For the backstory on this thread, please see the original Familial ALS posting. Perhaps a moderator can combine these two? We have received the gentetic testing results from my husbands brother, who had ALS-like neuromuscular degeneration combined with a family tree with many ALS and...
    • Tkhalaska
    • Thread
    • advice als als and ftd brother familial familial als family family history ftd genetic genetic testing health military questions research symptoms testing
    • Replies: 4
    • Forum: Familial ALS (FALS)
  5. D

    Tobii user needs glasses

    Tobii rep said bifocals with line don't work well with their eyegaze technology. My 50 year old eyes need help. Have any of you used progressive lens glasses with a Tobii? How was your experience? Do any of you have advice?
  6. F

    Would really appreciate some advice

    Firstly, I'm keenly aware what some of you are going thorough, and I'm in awe that you all still give advice and aid to others. A truly good sign of humans overall. Thank you. And I wish nothing but goodness to you all. I'm terrified I have ALS. My main symptoms are arm/leg weakness, some...
    • FiGii
    • Thread
    • advice als als? arm back brain diagnosis emg heaviness hip hope lift muscle neurologist pain shaking shoulder stiffness stroke symptoms test tests twitch twitches weakness
    • Replies: 8
    • Forum: Could this be ALS?
  7. kitkat

    Choices

    My PALS finally received his PWC a couple weeks ago. He should have received it almost a year ago, but miscommunications & ball dropping happened. It is set up with a head array so he can drive it, and a joystick in the back so I can drive it. Unfortunately, his neck has gotten so weak, he is...
    • kitkat
    • Thread
    • advice back ball children eating health health aid peg pwc swallowing vent work
    • Replies: 7
    • Forum: Current caregivers
  8. Jamesgol

    Wheelchair & van advice?

    I have now reached the stage where a wheel chair and van combination are needed. My neurologist just wrote the prescription for a wheel chair yesterday. The ALS Society is going to loan me a Permobil F3 until I can get one of my own. Which type of wheel chair (and options) do you prefer? What...
  9. R

    Advice about EMG result

    Hi everyone. First time poster, I first want to thank all of you for what you do on this site. Truly inspirational. I will be brief. My symptoms are twitches mostly in left calf ( about a month now) but sporadically other places ( all over). I have no clinical weakness that I can discern...
    • RJD19
    • Thread
    • advice als atrophy brain breathing clinical emg mri muscle problems swallowing symptoms test twitches twitching weakness
    • Replies: 5
    • Forum: Could this be ALS?
  10. S

    We are stuck and need advice

    I have had 2 accidents now and I just dont understand how it's not ALS related. Both now I have been in the bathroom on time but as soon as I see the toilet I cant hold it anymore and it all comes out. Is this normal? Plus my hair is so greasy and my hair on my head and eyelashes are getting...
    • samnikolep
    • Thread
    • advice als ball constipation cramps diagnosis dry mouth gabapentin helpful increase meds muscle questions riluzole shower stress travel work young
    • Replies: 7
    • Forum: People with ALS (PALS)
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