advice

  1. N

    Does this sound like bulbar onset?

    Earlier this week whilst driving my car I started whistling along to a song and not much sound was coming out, this is strange because i normally have a very strong whistle. I got worried and panicked a bit. Fast forward to this morning, I tried to get my dogs attention and went to make that...
  2. C

    Strange ongoing Symptoms help if possible appreciated thanks

    In advance i would to say the people giving help on here is very generous depending you go out of your way to help people with their own concerns. If anyone can be of help that be great. Firstly (i know people probably are going to tell me the risk is incredibly low as it is due to this but...
  3. T

    Advice for home renovations or adaptations

    Hello: My husband was recently diagnosed and we are meeting with some people next week about renovating or adapting our home. We know we need to widen doorways and make his living space wheelchair accessible, but I'm hoping to tap into the knowledge of people here. Tell us what we don't know...
  4. Doglady

    Limb onset question

    Hello all! It's certainly great to be a part of this group of experts - and I do appreciate all the helpful advice I've received and read in past messages on various topics. The knowledge and wisdom here is awesome and I've learned a lot! So, where else would I go when I can't figure...
  5. W

    Symptoms bulbar and left arm

    Hello! My heart goes out to anyone with this horrifying disease. Nobody deserves it. I have read the sticky in this forum and have been unsure wether I should post, but my anxiety about this disease is severe. I figure I should seek the advice of people who actually have this disease and...
  6. S

    No diagnosis - Nervous after 6 months

    I’m concerned about my symptoms I’ve been facing them for just under 6 months. Let me start out by saying that my life is very stressful. I manage about 500 people all over the world. The ups and downs of corporate politics are very impactful and my stress level in the last 6 months has been...
  7. S

    Progression in symptoms - need of advice please

    Hello, and first of all, I wish you all the best you can all get for 2019 including love and peace in your souls. I posted here a few weeks ago, as I was concerned with a myriad of Symptomes including feeling of weakness in arm and one leg, beginning of fasciculations, a number of sensory...
  8. S

    Symptoms I have observed

    Hi, I have read the stickies regarding ALS and I admire the commitment of everyone who takes the time to answer all the questions. I am 63 years old male having retired from work last March and my general health is good, I have haemochromatosis (iron overload) which is well managed by my...
  9. A

    Seeking Help

    Hello- I am a 29 year old male. for the last 5 years I have been experiencing twitching all over my body. Pretty much anywhere you can think of, including my tounge, has experienced twitching. Starting about a year ago I noticed I was having seriously over emotional reactions to things. For...
  10. P

    Scared this Holiday Season

    First, I want to say that I have been to this community off and on for the past week or so and have seen how incredibe you PALS and CALS really are. Thank you for doing something you certainly don’t have to do. This greatly helps people like me looking for some possible insight into their...
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