advice

  1. A

    Worried about these symptoms

    Hi! Male 44 years old here. ’m sorry to be posting but I finally decided to seek your advice. My wife and I are nervous and some of your thoughts might really help us. I’m having some symptoms that are worrying me. Here they are in brief: Dec 22: Odd headache in left temple— three pulses, long...
    • Auron23
    • Thread
    • advice anxiety arm back balance brain clinical headache hours mri muscle muscle twitches muscles night paresthesia stress symptom symptoms tiredness twitches weakness worried wrist
    • Replies: 5
    • Forum: Could this be ALS?
  2. A

    Need Advice

    Thank you the helpful saints of here who tried to help people from all over the world. I have read not only stickies but may be all the threads of this section. Yes I have full of anxiety and try to struggle against it but I am not able not manage it yet. September of last year I had headache...
  3. T

    Where to Go From Here

    Hello. My husband was diagnosed ALS May 24, 2018 at age 43. It all began in April 2017 when he began having difficulty clipping his nails, left hand onset first. From there it was over a year of testing, specialist, etc, which is the only normal thing I guess about this disease; difficult to...
    • TulipShell
    • Thread
    • advice age als arm balance breathing chair diagnosed diagnosis family feeding feeding tube lift night onset reading shower shower chair speech swallowing symptoms testing
    • Replies: 8
    • Forum: General discussion about ALS/MND
  4. C

    MRI and now call with doctor

    So my Dad was called for another MRI of his brain 7 months after ALS diagnosis. That was 2 weeks ago. The neurologist said she wouldn’t call if nothing shows up. Today her office called and asked if my Dad was available for a phone call from the neurologist tomorrow at noon. Does anyone have...
  5. T

    Radiation therapy for secretion management

    Was hoping for feedback from this useful group on their experience with radiation therapy for secretion management. To date, we have been managing my PALS secretions with a combination of scopolamine patches, glyco subQ injections (pills were not effective and he now takes injections every 4...
  6. J

    Medicare-Can I Apply While on Sick Leave?

    I am a federal employee who recently started using my accumulated sick leave after working for the first two plus years after diagnosis. In my preparations for filing for Medicare/SSDI, I cant tell if I have to wait until I have exhausted my accumulated leave before I apply since I will still...
  7. R

    Advice on symptoms - "weak" leg & twitching

    Hi All, Like many others on here, I have tried to avoid posting for as long as possible but would really appreciate your views on my symptoms based on your experiences. From what I have read, this site is a tremendous support and your are all very generous with your time. My summarized story...
    • Rojo
    • Thread
    • abdomen ability advice als atrophy brain burning diagnose emg exercise fatigue fingers heaviness ignore muscle muscle fatigue neurologist progression shaking stiffness story support symptoms twitching update
    • Replies: 21
    • Forum: Could this be ALS?
  8. S

    Strange symptoms

    Hi everyone! 32 year old female here. 5 months ago I started having really tight muscles in my arms. Went to pcp was told it’s anxiety. Started meds - no help. 2 months ago I started experiencing body wide twitching. Started magnesium, exercising and stopped caffeine. I get plenty of fluids and...
    • Scared12345
    • Thread
    • advice anxiety caffeine cramping female magnesium meds muscles neurologist symptom symptoms thumb twitching
    • Replies: 2
    • Forum: Could this be ALS?
  9. D

    Strange symptoms

    Hi guys, I hope everyone is doing okay today. Since last September I have had extremely strange symptoms which have progressed. At the end of September 2018 I had a sudden onset of left muscle weakness and left arm muscle weakness. It wasn't gradual just happened one day. There was no less of...
    • Deedree96
    • Thread
    • ability advice age als arm back balance burning clinical emg emg? fatigue hope mri muscle neurologist onset pain scared spasms symptom symptoms test twitch twitches weakness
    • Replies: 0
    • Forum: Could this be ALS?
  10. T

    Just about ready to give up;

    Hey everyone. I've never posted on a forum before such as this one, although I've long been someone that often browses to see what others are going through and that people have to say. But I'm genuinely at my wits end and don't know how to cope any longer, so perhaps just discussing my issue a...
    • TylerB
    • Thread
    • advice age als? bfs constipation dad diagnosed fibromyalgia hearing hours lift muscle muscle weakness neurologist night spasms swallow twitching weakness
    • Replies: 1
    • Forum: Could this be ALS?
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