fvc

  1. V

    Breathing issues?

    So I'm trying to figure out if my dad needs help with his breathing. He says he has trouble breathing at night intermittently sometimes and same thing during the day but even less often. He has been feeling tired more during the day and sometimes has headaches. The problem is hes in the...
  2. D

    End stages

    Hey just wanted to update. Yesterday my pals had his last appointment with his neurologist. She assured him that hospice is managing his care well and that she would continue to be his neurologist, but that there was no need for a follow up appointment. He has continued to stay in denial...
    • Drewsmom
    • Thread
    • age bed denial fvc hospice hours morphine neurologist pain stages update wanted weakness
    • Replies: 1
    • Forum: Current caregivers
  3. E

    Time to say THANK YOU!

    I’ve been reading this forum for a long time but only recently became a member. It’s definitely time to say THANKS! I’ve learned a lot and wanted to let you all know that your expertise is so vital to the silent majority of us “lurkers” on the sidelines. So, thanks to all the regular...
    • Ells
    • Thread
    • bipap diagnosed early equipment eyex fvc kids life love meds mnd night onset pwc questions reading software swallow tobii tongue voice wanted
    • Replies: 11
    • Forum: People with ALS (PALS)
  4. swalker

    When Bad News Is Good News

    I had my regularly scheduled appointment with my pulmonologist today. My FVC was 30%. Now, most folks would think that sucks. I, on the other hand, think it is wonderful news. My first PFT showed an FVC in the mid 60% range. From there, it dropped pretty much linearly over time to about...
  5. G

    Symptoms for weeks

    Hi everyone, I know your time is valuable so I will make this as succinct as I possibly can. A little over a month ago I started waking up with headaches and began waking up at least two times each night. I've also noticed myself become short of breath a lot quicker than normal. Then, over...
    • garyh341
    • Thread
    • ability als? atrophy back early familial fasciculations fvc headaches lift mri neurologist night onset pain respiratory respiratory onset slurring words symptoms test work
    • Replies: 7
    • Forum: Could this be ALS?
  6. 4tloml

    Question on Sudden Shortness of Breath

    Looking for advice-- Just yesterday, PALS's shortness of breath increased dramatically. Now needs a breath for almost each word he tries to speak. - His O2 is still in 90s. - He is on Plavix (blood thinner). - His FVC was 60% 4 weeks ago. - Five days ago the RT was here and said his lungs...
  7. N

    ARrgggg, what to do? (Tirasemtiv or NP001)

    OK, I go on Tuesday 12/1 for my initial screening for the Tirasemtiv Phase III trial but I check my email today and received this for the NP001 Phase II at Cutter. <snip> Dear Brad, Thanks for your interest in the NP001 study and your patience as we get the study organized. I am very...
    • notBrad
    • Thread
    • advice als arm back bipap breathing clinical clinical trial cpap diagnosis feeding feeding tube fvc hope hours medical night np001 progression questions trial weakness
    • Replies: 23
    • Forum: Research and trials
  8. gooseberry

    swallowing,fvc,peak flow study

    Today Steve participated in a research study. It involved a swallow test, pft, cough test with audio and video recordings, a mental fitness test and a rating scale. The idea is to try to find a portable and simple measure that can be used to assess swallowing and potential for aspiration. It...
  9. mpnatx

    Wondering How Others Feel Weakness

    Looking back over the year since I've been diagnosed. I've noticed gradual weakness in certain parts of my body. Since I use my legs the most, that is what is most noticeable to me. I feel fortunate that I'm probably a slow progressor. But, what I've learned here is that we can speed up and...
  10. Jeanau

    spirometry results question

    I have a copy of my spirometry test results that I had done yesterday. There are a lot of confusing abbreviations and percentages. One nice thing about the report is that they show the numbers of the last test beside the numbers of the current one. I went in knowing that my breathing was more...
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