fvc

  1. P

    Slow moving progression of ALS

    My pals was diagnosed in 9/08. He's been in a very slow moving progression. He's still able to use his arms, but is losing his fine motor skills. At our clinic this week, his Fvc declined from 31% to 26%. He doesn't seem to be noticing the insufficiency at all, but I'm told that some pals...
  2. ShiftKicker

    FVC test- wording for request

    I'm still having sleep issues. I will be going to a sleep clinic in about 3 weeks, but one of my doctors wants to have respiratory testing done first so I can hand it over to the sleep specialist as a baseline for my sleep test. While I doubt I'll get much sleep in whilst being watched by people...
  3. tripete

    Progression of ALS and FVC values

    At my last clinic appointment my Doc made the comment that my progression as a whole had been relatively slow. This caused me to wonder why I was feeling the effects of it so prominently. As I have a lot of time to think, her comment began to irritate me as it did not seem to take into account...
  4. B

    Invasive mechannical ventilation

    Hi, I am new to the forum but not to MND. I have had MND since I was 21 years old, however my disease was an UMN only disease, unfortunately in the last 4 years it turned into UMN/LMN ALS. I had a very weird onset as it was respiratory onset from the beginning. The first two years I used regular...
    • Bob1985
    • Thread
    • als bipap bulbar financial fvc life mnd onset pressure problems respiratory respiratory onset scared support surgery trilogy umn weakness young
    • Replies: 2
    • Forum: General discussion about ALS/MND
  5. S

    Early Bi-Pap

    Hubby had an episode of extreme (even more so than usual) fatigue for about a week. On Thursday he would not eat or drink anything and laid in bed all day. Friday morning he was short of breath...not gasping for breath but not able to take full breaths either. We went to the emergency room at...
  6. C

    Shortness of Breath

    For the past few days, my PALS has gotten progressively more short of breath. We called the clinic and they have ordered a BiPap. The company is supposed to be calling us this week to set up an appointment, but I don't know when or if we should go to the local ER. He is definitely...
  7. D

    Over night?

    Pal wants to go to his Fathers 75 bday party but his father lives 4 hours away, so we would at a min need to stay one night. He doesn't think he can sleep on a flat bed anymore. He is now wearing BiPap all day, but I have an inverter to use that in the car, Any ideas on how we can prop him in...
    • Dizmom
    • Thread
    • bed bipap cals fvc health hours ideas night sleep travel work
    • Replies: 2
    • Forum: Current caregivers
  8. T

    Bi pap

    My husband has been having problems using the full face mask it hurts the bridge of his nose. We've tried everything, gauze, gel window cling taped down, still pressure that hurts him. He refuses the nose pillows and nose mask. We are waiting on a different mask but it's too soon for delivery...
  9. Chumpy

    Nuedexta info please

    Any information on this would be great! PAL has Bulbar ALS, but not the laughing and crying. We've heard good things on the bulbar side, but concerns on side effects! Please share your experience with this medicine! Speech is almost gone, swallowing barely, FVC 40% so diaphragm is getting...
  10. C

    Feeding Tube

    My Pals is steadily losing weight -- 40 pounds since diagnosis in Feb 2014. He still eats by mouth but it is becoming more difficult. I have modified food textures, lots of soups, soft foods and I use the stick blender on many things. He still indulges in an occasional cookie and few chips on...
    • codyclan
    • Thread
    • blender choking clinic cough assist diagnosis eating electric wheelchair feeding feeding tube food fvc lifts nose problem speech transfer wheelchair
    • Replies: 14
    • Forum: General discussion about ALS/MND
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