fvc

  1. A

    Hospice

    I had posted earlier about denial among family members about my PALS ( 79 year old woman diagnosed in 2013 with ALS). I took her to the clinic yesterday. Her FVC is 36. She has decent strength in her hands and forearms; voice is strong; swallowing is worse. The neurologist recommended...
    • AnxiousWaiting
    • Thread
    • cals clinic denial diagnosed eating family fatigue fvc hospice hoyer hoyer lift information lift love meals medical neurologist swallowing switch therapy voice
    • Replies: 8
    • Forum: Current caregivers
  2. chally

    New fvc

    News after pulmonary test is. FVC 49%. Blood gas 35 Good news is I got my ears lowered when I got home. Haha Love ya. Chally
  3. chally

    Feeding tube in different location.

    I am going in for feeding tube at end of the month. After talking with a gastro RN and expressing my concerns about my stomach placement and having a RIG vs PEG she mentioned a tube right into the Jejunum which I understand to be the small intestines. We were talking about this because as I look...
  4. KimT

    Question about PFT

    My FVC has increased slightly since 2014 but my total lung volume went down and then stayed at 60-70 for the past year. My MVV is at 95% It was 120% in 2014 but it varies. 95% is the lowest. After the 95% was done, I did one that was 118%. Why is my PI max negative? I'm not short of...
  5. E

    Respiratory Weakness Early- Typical Path

    I read in another thread that there are a few on here that had respiratory issues early on and they all seemed to follow the same path, but I haven't found a post that talks about how the disease progressed. My Mom had a FVC of 34% when she was diagnosed last month. Her symptoms started with...
  6. E

    My Mom's Diagnosis- Sporadic Bulbar Onset ALS

    It was sometime last spring when my Mom's voice started sounding hoarse. She discounted it as being sick since she typically loses her voice once a year for a couple weeks when she gets a cold. In June, my best friend got married and she couldn't stop crying. She said she was just tired ,but...
    • ersmzd
    • Thread
    • als atrophy bipap brain breathing bulbar bulbar onset clinic crying diagnose diagnosis early friend fvc hope muscle neudexta neurologist onset pain progression pseudobulbar research respiratory sporadic swelling tests thumb
    • Replies: 3
    • Forum: Newly diagnosed
  7. W

    How long can a PALS survive with extremely low FVC?

    When they're on a machine like the trilogy 24/7 with no desire for a trach, I mean. Below 20%, is it a constant question of when they will aspirate or suffocate? Can a PALS technically be at 0% and still survive on the trilogy? I am friendly but not close with someone with ALS and as they have...
  8. M

    Sleeping Comfortably

    My fvc drops 25% when I lay down and I can't keep myself from falling over sideways (no matter how many bolsters) when propped up. I considered a medical bed, but after several nights in hospital falling to side, I finally got an electric Lazyboy instead. It has been such a godsend. I got one...
  9. D

    Colds and kids and PALS

    We have little kids and if you know kids, you know they are little germ factories. Colds go round weekly at preschool. What do I do to keep my husband safe from it? His Fvc has been 100% so breathing is still strong but he is having a real problem coughing (his cough is weak) and he's worried...
  10. tripete

    2 Years ago - The End of Days

    Today marks the second anniversary of my first ALS diagnosis. We lived in Northeast Georgia at the time and had traveled home to Pennsylvania for the long Thanksgiving weekend. On Sunday of that weekend we drone form Pennsylvania down to see Dr. Pulley in Jacksonville, Florida for our Monday...
    • tripete
    • Thread
    • als back breathing clinic diagnosis disability emg equipment family foot fvc hours love medical muscle neurologist onset pennsylvania problem problems respiratory respiratory onset second opinion social security wrong
    • Replies: 11
    • Forum: General discussion about ALS/MND
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