fvc

  1. B

    really MND? strange onset? - just some thoughts appreciated!

    Hi everybody, It took me a several months till I decided to post and apologies that it got right away quite a long one... Just to briefly introduce myself I am now 30 and w/o any family history of neurological issues. “Past” presentation of: fit, sporty with a stressful and demanding job (so...
    • bone33
    • Thread
    • abdomen abdominal als atrophy bfs clinical cramping cramps diagnose emg exercise exhaustion family history fingers fvc hiv mnd muscle muscles neurologist onset pain power swallowing symptoms thumb twitching weakness wrong
    • Replies: 6
    • Forum: Could this be ALS?
  2. K

    FVC question

    Is there a way to measure forced vital capacity at home with a regular spirometer? Thanks for any input!
  3. C

    Should I be on a BiPap?

    At my last ALS clinic my FVC was 66. Three months before that it was 70. The RT asked if I was interested in using a Bipap. I told him it was my understanding that it was best to get it before I needed it to be able to get used to it. He ordered it and it was delivered several weeks...
  4. C

    What should I know about a Trilogy Bipap??

    I had my clinic visit on the 8th of this month and my FVC was 66. We talked about a Bipap machine and I told the RT I would rather get it early to get used to it before I really need it. I had kinda forgotten about it and a rep from Midwest Respiratory called today and said my insurance...
  5. B

    Breathing Test Results

    - My wife is scheduled to be seen @ an ALS Clinic, for a second opinion 3 day workup, but the appointment is over a month away. The doctors are undecided if she has ALS or PLS - Her not very involved local neurologist scheduled a pulmonology test for her (2 months ago), and she finally had...
    • Blessed1
    • Thread
    • advice als breathing clinic cpap fvc neurologist second opinion shortness of breath test
    • Replies: 5
    • Forum: People with ALS (PALS)
  6. A

    Medicare payment for BIPAP?

    Sorry, I don't quite understand how to find an existing thread, so if there already is information existing in the forum, please let me know how to access it and I'll start there. My partner is trying to get a BIPAP. Everything I've read and researched says starting this therapy earlier rather...
  7. KimT

    Question on Trilogy

    This question was brought up at a meeting of PALS. If you start BiPAP or Trilogy too soon, will it harm you in any way? One doctor said you should wait until your FVC is below 80 and another said you can start as soon as you have a diagnosis because it will take awhile to get used to it. He...
  8. Vincent

    South of 50

    I went for a PFT today ahead of my next clinic visit on July 12th. There is a sign right in front of the little booth that reads " the rt is not allowed to give you your results". But the computer screen is right beside the sign, and being able to read i was able to read the report. My FVC is...
  9. scaredwifetx

    Clinic yesterday and need help with test results

    I am hoping someone can help me to understand the breathing test results from yesterday. I know that Steve's numbers have went down but the clinic was careful not to discuss to much in front of Steve. Steve continues to believe there are not a lot of changes but I have noticed them and I am...
  10. LeprechaunSean

    9 Month Lunasin Update

    Just a quick update this time. My weight is still completely stable, I don't even really think about it anymore. My legs have definitely gotten weaker over the past few months and I was feeling a little discouraged about that when I went in for my three month FVC test, when low and behold I...
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