wife

  1. R

    How can I support my wife whose mother has ALS?

    Hello, I have been lurking here for years now. First because of the diagnosis of my wonderful MIL and lately for my own purposes. My MIL was diagnosed over 2 years ago. I was away, playing outside, with my friend when my wife got the news. Like so many of you, there were countless...
  2. Brianof4

    Brian’s wife

    My wife passed a few weeks ago. Ultimately, due to starvation from being unable to swallow food. It ended up being relatively unremarkable, close to the end she would sleep more and more until one day she didn't wake up. Her heart stopped the next day. She was so scared of reaching the point...
  3. S

    Newly Diagnosed (Day 2). I have a daughter and pregnant wife. We are devastated. Need help.

    I'm a 39 year old father of a beautiful 16 month old little girl and the husband to a beautiful and pregnant wife (another girl on the way). My fears started back in May (2020) when I returned to my job from quarantine. I own a personal training studio and train clients as well. My speech seemed...
  4. Elmagic64

    Caregiver for wife

    I am taking care of my wife that was diagnosed in Dec.2019. It has been overwhelming with the emotions and dealing with the complexities of this disease. We are trying to adjust our living arrangements to get her on one floor with bed and bathroom. She is now staying in a chair all the time...
  5. C

    Wife Possible Symptoms

    First off, I want to thank everyone who reads and responds to this thread. I truly appreciate your time and support. My wife has been going through some difficulties lately with her feet. 3 weeks ago, she felt her right foot start to drop. Her foot dropped and she also has what she describes...
  6. Roger Hoffman

    My Wife Kathy is gone

    I lost my beloved wife Kathy November 8th, 2019. She was diagnosed with ALS January of 2019 and the progression was very fast. I am still having difficulty dealing with her passing. Family and friends are a tremendous help. I know this will take time. I was Kathy's primary caregiver through this...
  7. K

    Hoping I'm overreacting (like my wife says...)

    I have read the sticky above which somewhat eased my fears but wanted others opinions. 37M 210lbs Fairly fit. Run, play sports and lift weights Symptoms started a few months ago and seem to be getting worse. Started with slight slurring and swallowing difficulty. Then started getting twitching...
  8. Blues88

    Previous poster - wife officially diagnosed

    Hi, Unfortunately, my wife has been officially diagnosed with bulbar onset ALS by the Barnes/WashU neuromuscular clinic. Dr. Bucelli has been tremendous, and thanks to my wife's absurdly detailed symptoms journal and timeline, his team condensed all of her testing into a few weeks. No doubt...
  9. R

    My wife (36y)

    Hi, 8 months ago we was on holiday, she run, rode a bike, walking 10km. In August she has started to have fasciculations in the thighs and with the index finger. In October she got damage to peripheral nerves diagnose without any motor neurons damages. In February this year we had new tests and...
    • rafiksq
    • Thread
    • brain bulbar diagnose fasciculations finger fingers holiday muscle progression thumb wife
    • Replies: 31
    • Forum: Could this be ALS?
  10. H

    Hump1950’s wife

    Laurie Thanks for the reply. In our case the beast was beginning to go to legs but still good movement with arms. Yes, she passed feb4th in my arms my sister and her personal dr present past couple mos pretty bad with saliva and mucous but the end was very easy. No gasping for air...
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