wife

  1. NothingButLove

    My wife, Ann...

    Ann, my wife, passed away last week on June 21st, 2018. We loved each other very much and shared 26 great years together. Ann loved life. She never got depressed. Even in the face of an impossible situation, Ann managed to find joy and happiness in life. More than anything, Ann loved our...
  2. M

    My Wife

    Firstly, thank you for the opportunity to ask questions even with you all being busy battling ALS. My heart goes out to you all. I have also read the stickies and I want to stress at the very beginning that I am not looking for a diagnosis here (only doctor can do that) and I am also not an...
    • Morse36
    • Thread
    • age als atrophy burning choking cry cure diagnosis emg fell friend hope hyperreflexia neurologist pain problem sleep speech story swallowing symptoms tiredness twitching unknown weakness wife wrong
    • Replies: 17
    • Forum: Could this be ALS?
  3. B

    Angela- Billard's wife

    Good evening all, Thank you all for the words of encouragement and comfort. Sunday morning at 230 am my Sweet Angela gained her wings. It was very hard letting her go but very comforting knowing she is now disease free and rejoicing in Heaven. I asked her 2 weeks ago to give me a sign that she...
    • Billard
    • Thread
    • dying family free hours immediately nurses wife
    • Replies: 12
    • Forum: In memory of
  4. B

    newbie and wife hello

    I was diagnosed 2 days ago after a long year of tests and many different answers to my problem. of course I am scared and have so many questions. my wife will be doing the typing as I am already having much difficulty getting my hands to do what I want. what kind medicines are you on? they are...
    • billyntish
    • Thread
    • diagnosed fear newbie problem questions scared sleep tests wife
    • Replies: 7
    • Forum: Newly diagnosed
  5. F

    My wife died of ALS last Monday, Nov 27,2017

    This is the last time that I will post to this site. I was a care giver for my wife for 2 years....I was in denial about her ALS and never believed it. She had horrible pain before she passed...so anyone who thinks that ALS isn't painful is wrong. Some people with this horrible disease do have...
    • finiteguy
    • Thread
    • age als back breathing cell denial emg eyes mnd morphine mri pain tests wife wrong
    • Replies: 14
    • Forum: In memory of
  6. TomSanti

    Wife and I are losing our minds over temperature

    With all the thousands of posts and replies on this board I could be divorced by the tiime I have searched so I apologize if I am being redundant and have no problem should this be moved to a different thread. Here's the deal, I am in my late 50s, my wife in her mid-50s she is hip deep in...
  7. NothingButLove

    In about 6 hours, my wife will have a feeding tube

    In about 6 hours, my wife will have a RIG placed at UCI's radiology suite. What a crazy two months. It all started on August 1st. Here's a brief run down: FVC down to 44% from 87% four months earlier. Doctor prescribes Trilogy. (Thank you Laurie for the settings!) Wife takes vacation with her...
    • NothingButLove
    • Thread
    • advice als cals caregivers caregiving clinic depression feeding feeding tube fvc health hope hospice hours medical pressure rig trilogy vacation wife
    • Replies: 17
    • Forum: Current caregivers
  8. gigem

    Wife diagnosed with bulbar ALS - some questions

    Hello all. My 52 year old wife was recently diagnosed with bulbar onset ALS. Initial diagnosis was by a neurologist Dr. Greg McLauchlin at Baylor, who then referred us to Dr. Harati at Baylor who confirmed the diagnosis a few weeks ago. Obviously it's been a very rough few months for us...
    • gigem
    • Thread
    • als breathing bulbar bulbar als bulbar onset clinic clinics diagnosed diagnosis early feeding insurance kids neurologist onset questions slurred speech speech vacation wife
    • Replies: 14
    • Forum: Newly diagnosed
  9. T

    One Year since Diagnosis- From a Wife and Caregiver

    Hello, I'm TerriK, Wife and Caregiver of my Husband diagnosed with Bulbar onset ALS one year ago. He started with syrupy speech in November 2015 and muscle atrophy in his upper body. After numerous tests, MRI's, Blood work, Doppler.........Visits to Neurologists, ENT's, GP.......etc.....we...
    • terrik
    • Thread
    • abdominal als atrophy balance bulbar bulbar onset cals can't swallow caregiver constipation diagnosis emg fvc love lung capacity mri muscle onset peg speech swallow tests tongue voice wanted wife
    • Replies: 4
    • Forum: Current caregivers
  10. NothingButLove

    My wife starts NP001 on Monday, 5/1/17

    The clinical research coordinator at UCI MDA-ALS & Neuromuscular Center emailed my wife and said: "I wanted to let you know that all the results are in and you qualify for the NP001 ALS trial! We are very excited to have you participate and sincerely appreciate your effort!! As I mentioned...
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