The other day I posted on Caringbridge that I was his wife and caregiver.
A few days later were getting in the car and arguing at the same time. I told him to get in the $#%*& car and let's go. The he stopped in his tracks and asked me if that was the wife or caregiver talking. He said if...
She is a 32 y/o female.
Just last October (when she was diagnosed with ALS) her FVC number was at 75%. Went to 57% in Feb. Got back from pulmo this afternoon and it is at 31% now.
Here diaphragm readings were (MIP/MEP) were +15/+25 roughly...
Anything I should be on the watch for at this...
hi all just wanted to let you know mike is in hospital he caught a real bad cold and couldnt breath so they put him on ventilator(sorry if misspelled) since thurs night and just got it removed sunday 12 . He has had some problems but no vent yet. he wanted everyone to know what was going on. all...
Hello again i have been dealing with my case of als very well progression much slower than expected which leaves me very happy in that aspect. My wife has grown very distant. I confronted her about the amount of time she was spending away from home and through some digging found a strictly...
This is only my second post but I have visited almost every day since Adele was diagnosed with ALS/MND on 26th of March. I got alot of comfort from reading this site and hearing how many of you are still leading inspirational lives.
Adele was 56 and we have been married for nearly 32 years and...
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It has been awhile since I gave an update. Serena is doing OK. Her FVC was down to 18% at our Oct. clinic. Tomorrow hospice is coming in to get us set up. This will get her some constant medical monitoring. She remains as strong as ever. Early in Oct. she told me she wanted to make the 16 hour...
greetings everyone. wanted to stop by and give you update on my wife...we were hoping it wasnt MND but not so sure. its probably not ALS but probably MND... :cry:
today in her current state she is having the following issues:
a. she can no longer lift her arms any higher than shoulder level...
I am a new member to this site, looking for support and understanding of our situation and hopefully some resources. My husband was diagnosed with ALS and FTD seven months ago. He is only 40 years old and we have two young boys, 8 and 10. Thankfully, we have an amazing support group of family...