Serena couldn't finish out the school year.:( After only being able to work a day and a half last week and none this week at all she just can't do it any more. She just does not have the energy or the lung capacity. She is rarely off her bipap any more. It is really hard! She wanted more than...
Serena wanted me to ask if any PALS had problems with fatigue if you get away from your normal routine. She gets up every weekday at six to go to work and is in bed by nine. She seems to do OK with that but if she deviates at all it just wears her out. Last Friday there was a problem with the...
Hello all- I am new to this forum. My ex husband and father of my children was recently diagnosed with als. Our relationship deteriorated long ago and we cannot communicate at all. I am saddened by his illness but cannot express any of my feelings without a tirade of anger and resentment back at...
My dear wife, Rhonda, passed away peacefully on August 19. Her funeral was Saturday the 22nd. Her struggle with ALS is over and she is now resting peacefully. I wish you could all have known Rhonda. She was very special and fought through this dreadful disease with so much courage. Never...
Hi Everyone
I am not a caregiver. I am the recipient, a PALS.
I have not seen to many posts like this one , so I hope to start a trend.
So many posts cover the dark sides of this disease. No one says Thanks.
I wish to say to my loving wife of almost 30 years, that I really appreciate the...
The Cardinal
Simple things precious
Not noticed before
A cardinal dancing
Outside her front door
Hopping and chirping
Sweet singing was heard
She longed to join in
But could not speak a word
Her eyes made it plain
All she wanted to say
So seed was provided
Each start of the day
Freedom in...
After getting a "probable ALS" diagnosis Thursday, wife and I haven't sat down and talked this thing out yet. I don't think she's accepted it yet, and doesn't know much about it. I need some links to point her to, so she can get all the information there is out there. I am going to point her to...
I know we are not alone with the cost of living going up all the time. Maybe we can share some ideas here of how to handle these problems.
My wife's health insurance Blue Cross has gone up again to almost $500 a month. She is to have surgery on a torn tendon in her elbow this coming month. She...
Hi all,
I haven't posted here in quite some time but the people on this forum are so supportive.
When I posted here everyone felt like family.
My Wife and best friend "Susan" passed away Saturday night at 10:30pm. I was by her side along with her nurse. We watched as she took her last breath...
My wife was diagnosed with ALS in December. She's just now 35, and we have a 6 year-old son. I'm trying to do something to give her hope. Please take a moment to read this and help make it happen.
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[B]Melissa "Fiver" Kern [\B]has been a fan of J.R.R. Tolkien since she read...